Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Wednesday, June 10, 2009

June 10, 2009


Katie made it off safe & sound to her Dad's, I talked to her this afternoon, she said she was babysitting her brother Jonah & they were having a good time. I know she was ready to get a break from the pace of our house. I sent her report card with her & she told me she has not shown it to her Dad yet, her grades are not that bad but she could have done much better if she would have applied herself a little more. She said she is starting Art classes in July so I am sure she will really enjoy that.

I took Zack for a very short motorcycle ride last night, he loved it. Brandon started Drivers Ed today & is lifting for football daily except the weekends. Paige coned me into hair dye & baking goods at the grocery store tonight. I am going to enroll her the next time the Red Cross offers their CPR/First aid course here in town so she can get a baby sitting job if one comes along this summer. She took Zack to the Park on Tuesday afternoon & they had fun, they stopped at McDonald's afterwards & had a Happy Meal.

I will be back down at the base again on Friday. Only 2 more weeks of part-time hours at ODH & then I am back to Full Time. We decided we are not going to try & go to Sturgis this year, wishful thinking but it just isn't going to happen.

As far as my condition I have really been slacking when it comes to keeping up with my lab draws. My lab order expired & I forgot to call & get an updated order. They still drew them on the expired order at Madison County Hospital but it was a pain, no pun intended. I did call the Hospital again & they said they sent it but I had them fax it again only to find out they re-faxed the expired lab order. Needless to say I am not having my lab draws done twice weekly...

So here are my Lab Updates:
Day----WBC----ANC--------Hgb--------PLT---- Transfusions
6 Mar---185-----1.4------80---------11.3---------120------------N/A
I had a couple of lab draws when I went in for treatment in April but I do not remember what the labs were. So like I said earlier & as you can see below, I have really been slacking...
28 May---268-----1.3-----400---------11.4---------200------------N/A
10 Jun---287-----3.5----2200---------12.5---------198------------N/A

I am sure my Dr will give me a long lecture when I go in tomorrow, I will have my 6th Bone Marrow Biopsy. My ANC counts are good so we should be a go for the Biopsy. Marc is fighting with his work for FMLA so he cannot go with me, that will be a first & I am really not happy about this plus who will take the pictures? I will have to do the Biopsy without any drugs other than a topical numbing agent, I do not want to risk driving & getting in an accident afterwards & I will be going to the James straight from work.

This week after completing 3 day's in a row of the Homeland Security Exercise & Evaluation Program course, it has deflated me. The only reason I think I survived was due to my colleague's Paul from ODH & Kristen from Sandusky County HD, thanks guys my cheeks hut from laughing!

The weeks keep going by faster & faster & it seems like each time there are many tasks that I do not get done. Marc who is normally a morning person & up at 4:30 am every morning has been not getting up until about 5:30am. To my surprise he has been hitting the snooze button several times. this is very not like him. We both seem to be really tired a lot here lately. I will blame it on the nice weather & endless list of things that always seem to be done, such is life. As soon as I get the results back from the Biopsy I will update the Blog, I hope I am just being paranoid but for some reason I have been real nervous for this appointment, we'll see.

6 comments:

Unknown said...

hi honey, i hope your test goes ok.i know you would be happier if marcus could be with you. i hope katie has a good visit with her dad. tell everyone hi. i hope to get down when sharon is home. i may have a summer job,but i think it will be early hours.i know you have so many things to do, but i wish you would take it slow. i love you. i am anxious to see sharon and the girls.love you soooooo much.love, aunt bonnie

Anonymous said...

Hi Sandi!

I hope the test went well and you get good results back. I will keep you in my prayers. Baby Jordan is sitting on the stool beside me dancing to the music on your blog. Chanie and I have been talking about a get together. You can e-mail or test (yes I have text now) some good dates. We are running a 5k friday. We would like to run one in your honor if you know of any lukemia runs around. I haven't checked the internet yet. Tell everyone HI!
I hope you take it easy and get some rest!

Talk to you soon!
Paula

Aunt Lynn said...

Hi Sandi,
I pray all your tests went well and for the best results. I'm sure Katie will love the art classes. Glad you guys have been having nice weather we can't seem to get away from cloudy & rainy days. I hope it isn't rainy when we get to Ohio, it flooded the last time we were there. I really pray you don't have to go through the biopsy without pain meds. Y ou try to take it easy and whatever doesn't get done will be there when you get time to do it. Tell everyone hi & I love you all and I can't wait to see you all in August!

Aunt Lynn

Anonymous said...

Hi there, hope that all your tests go well, sorry to hear that Marc can't go with you. Keep us posted and take care of yourself. Hugs and Kisses, Betty Lorraine

Unknown said...

hi honey, i hope you are doing ok. i think of you everyday and i need to check on you. sorry i am so slow. i love you very much.love,aunt bonnie

Aunt Lynn said...

Hi Sandi,
Hope you are doing ok as well as Marc & the kids. I am getting so anxious to see you all. If we can we might be leaving sooner hopefully sometime at the end of July and staying until the 1st of Sept. So, I am really looking forward to spending time with you all. Take care & stay strong Sandi, I love you!!
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!