Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Thursday, June 25, 2009

June 25, 2009

I really like this picture of Zack on the slip & slide

It has been 15 days since my last post & I have had many phone calls asking for updates so here goes: My 6th Bone Marrow Biopsy results came back at 1% Blast cells, this means I am still in remission. As long as the Blast cells are less than 5% I am considered in remission. I finished my fourth cycle of Maintenance chemotherapy, Dicitabine, last Thursday. This is the halfway point, we have 4 more maintenance cycles to go. I should finish up somewhere around October. My Dr. released me to return to work full time effective next Monday. I have been building up to this & although I am not 100% I am pretty sure I can handle it. Here are a few pictures of the Biopsy, a lot of over the shoulder shots since Marc was not able to be there with me. I can't get over how fast may hair grew it is a little over an inch long in certain areas now. If it was not or my eyeballs most people cannot tell that I am still sick anymore.



The Union re-instated me as a steward at work & I already filed a grievance for someone. I also threw together a 3 year Training & Exercise Plan for the Agency over the past 2 days so I have been jumping right back into work without to much difficulty. I am still coming home & crashing every night though. I really don't have the energy like I used to have but once the Chemo is over I hope that it will eventually come back.


This is a good picture of Zack & Marc a couple of weekends ago


this is the last picture I got of Katie before she left to go to her dads

This is a cute picture of Paige in the egg toss during Circleville's Community day

We are taking a break from riding this weekend & staying home. Friday night we are taking the kids up to the Strawberry Festival & just hanging out at home all weekend & then next weekend we are taking them camping for the whole weekend. Brandon will be going with Tiffany & her family camping in Cambridge the same weekend. After Brandon's girlfriend slept over the weekend while we were up at the lake I was not so sure we were ever going to let him do much of anything, but he is almost 18 & we have to start letting him make his on way. I am hoping her parents will keep close tabs on them.

This is a picture of Marc & I the weekend we went up to Lake Erie for Sandusky Bike Week. If you look real close you can see the senic Davis-Besse nuclear power plant in the background...

I have not seen my sister since I got sick & she is coming home the weekend of July 18th. She will be bringing my nieces with her, Copper & Sierra. It will be great to see them all. I have only seen pictures of Copper & Sierra is the same age Zack was the last time they were up here so I know her & Zack will have a lot of fun together. I will have to keep on Marc to make sure he stays on top of the pool especially with it being so hot here lately. I told Sharon we will have to go on a ride while she is up here, she used to ride a little Honda Rebel. Can you see me riding Marcus bike with the Ape Hangers...

My Aunt Lynn is also coming to town in August so I am anxious to see her & Dennis as well. I really hope that they can come down and stay for awhile. I really feel that we have gotten closer especially when I got sick. My Lynn & Aunt Debbie both have been very supportive & close to me through this. When I moved away from Lima I have been real bad about not making it home & staying connected to the family. I can't say that it is any easier now but I am not making any excuses for it. I think I did that a lot when I went from 1 child to 4.

This is Marc's mid life crisis bad hair day!!!

Zack got his 2nd annual summer mohawk yesterday, as if he does not look rotten enough already.

This is me & my buddy Bill Larue in the background, we meet up during Bike week & finally got to ride together for the first time.

I found this picture from a ride Marc & I went on down by Jimbo's earlier this year & I can't remmber if I posted it once already.


Marc was back on his camera kick tonight when the severe storms rolled in & he got picture happy with the raindrops.there were a lot more than this.

6 comments:

Aunt Lynn said...

Hi Sandi,
I love all the pictures you post it is so good to beable to see everyone. I hope returning to work fulltime goes well for you. I am so anxious about coming home time can't pass quick enough. If we can, we may come in the end of July. So, we may get to see Sharon and her family too that would be awsome! I am so happy for the bone marrow results and pray for continued success in your recovery. Stay strong, we'll see you soon and as always I love you so much!
Aunt Lynn

Unknown said...

hi honey,it sounds like you are enjoying yourself and you should.it has been a rough year. i am excited about seeing sharon and the girls.i hope next week goes well for you. i love you bunches.love, aunt bonnie

Anonymous said...

Hi Sandi!
I am glad to here you are "back in the saddle again". I hope you take it easy though:) I know you are busy with family but I would love to get together with the girls and the kids for a cookout. e-mail me some dates and we will see what works.
Miss you!
Tell everyone Hello!
Paula

Unknown said...

hi honey,hope your week is going well.tell everyone hi for me. i hope to see you in july. love you bunches. love, aunt bonnie

FAPORT International said...

Your pictures are good, i like your pictures..nice blog:)

Ian said...

Sandi:

What wonderful news. I am so happy you are doing well. My wife continues to do well and we are on vacation now on the other side of Canada from our home. We actually also spent three wonderful days on Diamond Lake in Washington (just outside Newport) and it was great. My best wishes for continued good health!

Ian

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!