Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Saturday, March 21, 2009

March 22, 2009


We just got back from a long overdue family vacation. I think it is safe to say we all had a blast but we are wore out. Great Wolf Lodge was awesome. The water park portion was HUGE! Zack rode every water slide in the place & could not get enough of it. He even got to meet Whiley the wolf. Katie liked the hot springs & the Magic Quest interactive game. We got a Magic Wand & the game for Zack but Katie really got into it the most. Paige started not feeling well the second day down there but hung in. Brandon was a constant thumb warrior on his phone so we told him if Tiffany wanted she could come down for the day so she did, we got to meet her parents & they seem really nice. Brandon of course was happy the rest of the day. Marc said we will definitely go back in the future. Thank you so much Bill, if you had not got us the room it would have been awhile before we took a vacation.

I think we are all a little burnt out from eating out. I can't believe I actually said that. We had Max & Erma's on the way down, Golden Coral for dinner, IHOP the next morning, Tacobell & McDonalds for lunch, Larosa's for dinner & the Buffet at the Lodge for breakfast this morning. Needless to say I set out 2 chickens to thaw Saturday for dinner tonight & they turned out awesome.

Here are my Lab Updates:
Day----WBC----ANC--------Hgb--------PLT---- Transfusions
24 Feb---175-----2.4----1800---------10.5----------97------------N/A
27 Feb---178-----1.8-----800---------10.4----------93------------N/A
4 Mar---183-----1.6-----900---------11.3----------78------------N/A
6 Mar---185-----1.4-----800---------11.3---------120------------N/A
10 Mar---189-----1.8-----900---------11.2---------187------------N/A
13 Mar---192-----1.7-----500---------11.6---------238------------N/A
18 Mar---197-----1.8-----800---------##.#---------###------------N/A
22 Mar---200-----3.4----1800---------13.1---------162------------N/A

The James Cancer called Thursday to try & burst my bubble I think. My ANC counts were still not above 1000. Normally no big deal but due to my plan for returning to work the following Monday it would have been catastrophic. Well after waiting an extra day I could not take it so I went to the hospital today & had my labs redrawn. My ANC is 1800 so I am going to the James first thing tomorrow morning & then let the 2nd round of maintenance chemotherapy begin. Everything has been cleared by ODH's Human Resources office for my return except access to handicap parking. I received information from ODH's ADA office on a pilot parking exemption. It will cost $125.00 per month to park in the buildings parking garage compared to the $4.00 a day I was paying to park a few blocks away. There is no guarantee I will get it as it is on a first come first serve basis & it is only good for 3 months. I am so anxious to get back work at this point lets just hope there are no more unexpected snags. "NOW WHAT"

3 comments:

Anonymous said...

Hey Sandi!

I'm glad to hear everyone had a great time! You are all very deserving of it:) I hope all goes well this week. I will keep you in my thoughts and prayers and hopefully you will get to come to get together on the 4th.

Talk to you soon!
Paula

Anonymous said...

Hi there
Great to see that you had a enjoyable vacation! You are in our thoughts and prayers for the 2nd round with the chemo, you take care! Betty Lorraine

Aunt Lynn said...

Hi Sandi,
I was trying to leave a message earlier but Mother Nature wasn't cooperating. We're running the gauntlet of seasons all in a few days out here. Blizzards a few hours away and we're dealing with thunderstorms and tornados as well as flooding, geeeez!!! I lost power while trying before, maybe I can make it this time. Anyway, you all looked like you were having a greta time. What a nice man Bill must be for being so generous. The pictures are great, I really like Katie's bathing suit & what a pose she struck. Looking like a Supermodel pose to me! I'm sure Zack will be wanting to go back for more in the near future too. I hope Paige is feeling better and Brandon's girlfriend is very nice looking. I'm praying all goes well for you as you return to work especialy with the parking, that's just crazy! Take care, I love you all.
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
~~~~~~~
Take risks: if you win, you will be happy; if you lose, you will be wiser.
~~~~~~~
If you are never scared or embarrassed or hurt, it means you never take any chances.
~~~~~~~
Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!