Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, March 23, 2009

March 24, 2009


Here are my Lab Updates:
Day----WBC----ANC--------Hgb--------PLT---- Transfusions
10 Mar---189-----1.8-----900---------11.2---------187------------N/A
13 Mar---192-----1.7-----500---------11.6---------238------------N/A
18 Mar---197-----1.8-----800---------##.#---------###------------N/A
22 Mar---200-----3.4----1800---------13.1---------162------------N/A
23 Mar---201-----2.9----1300---------12.9---------144------------N/A

Marc has been waking me up every morning this week, he started at 5:45am. He is increasing the wake up window by 15 minutes earlier each day. It is his attempt to get me back in the mode of waking up early in preparation for heading back to work next week. I have never been a morning person. I am grumpy until I get in the shower, where he has always been an early riser. Needless to say I did not want to get up either day so far this week but I did anyways. After Zack gets on the bus each morning I drop Brandon & Katie off at school & head to the James Cancer Hospital for my Chemotherapy.

I had to get an IV placed Monday since I don’t have the PICC anymore. These weeks of Chemotherapy and weekly lab draws sure do make me miss my PICC. I have been lucky enough to get a chemo room with a TV so that helps the time go faster. I did talk to Jon the floor Nurse Practitioner about scheduling my 5 other Chemotherapy cycles around my work schedule. It will take some juggling & serious preplanning but he said we will work something out.

I have been pushing everyone so hard trying to get back to work Marc, the Dr & myself & now that it is right around the corner I am a little nervous. I have always been a work-a-holic but after being physically sick for so long & staring death in the face really forces you to rethink your priorities in life. All the extra time I spent on work at home…was it worth it? I can tell you this when I got sick all work stopped. I had no choice I mentally & physically could not do it & I seriously had to ask myself that question.

I have always pushed my self so hard in the military to be the best Airmen that I could. I have had a really great career but it also came with a price. I volunteered for a lot of things that took me away from the family. Last spring when my enlistment was up I seriously considered getting out, but there was still so much I wanted to do with my programs plus I really wanted to make Senior Master Sergeant before I get out & Marc got me thinking about our retirement so I went ahead & re-enlisted. I can’t tell you how many hours, days, weeks & even months I was away from my family over the years. When I was home I spent countless hours doing what I could not get done while I was at the Unit. Marc used to get so upset about that & we would argue. I could never just leave it at the base. My military career is headed down a much different path these days that will keep me grounded & that means more time with the family, the best of both worlds. I found out today I have a waiver to participate until September 2010 but I cannot deploy or go to any formal schools.

I was not just a work-a-holic at the base, when I first started at ODH I did the same thing. There was so much to do & I was still learning the job. There just never seemed to be enough hours in the day. It took me about a year of research to be the "subject matter expert" & to finally start feeling comfortable in what I was supposed to do. I have never been one to do the minimum with anything. I always try to overachieve & do more even if it is not requested. So in hindsight I suppose it was self-imposed.

Counting today I have been off work for over 202 days. I feel like I am walking back into uncertainty next week but I am confident I will do fine. I don’t know why I got this cancer but I do think it was someone’s way of telling me I needed to slow down. So I will still give 100% when I am at work but when I am home it’s family time. I am sure Marc will be quick to remind me of this should I go back to my old ways. Family does come first. I can't make up for the things that I have missed all I can do is be here now & I am taking it all 1 day at a time.

Speaking of 202 days it has been that long since I have quit smoking WOOHOO! Marc is still taking the Chantix & doing very well at resisting the urge to smoke considering I drive him nuts.

1 comment:

Aunt Lynn said...

Hi sandi,
You're looking good! I am praying that I have the same determination to quit smoking as you & Marc have shown me. Great job to the 2 of you!! I'm sure you will show the same as far as finding that happy medium between work and your family and thank god for Marc to keep you in check. Hope you guys are having better weather than we are. 60's yesterday & freezing today...crazy! I love & miss you, take care.
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!