Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Friday, March 27, 2009

March 27, 2009



I just completed my fifth dose of Dicetabine. I am so ready for this week to be over. Niki came up to the James & we got to visit which was so nice. She is such a positive person & always motivates me. Only 5 Cycles left now, I am glad for the 6 week break. It gets really tiresome sitting in the hospital for hours on end waiting. Waiting, I have spent a lot of time waiting over the past 6 or 7 months. After a long wait from my Dr & numerous e-mails with work I finally got confirmation that I can go back to work on Monday, YES!!!

Come to find out handicap parking access was a much bigger issue than I originally thought it would be. My Dr only made the restriction for access to handicap parking in the anticipation of the days that my levels are low & slow me down. Long story short my employer does not have handicap parking only a parking garage for exempt staff. I had to fill out a form for temporary access & that had to go all the way to the top. The Director did sign off on it this afternoon. I heard my Supervisor Jeff & Tom helped tremendously in expediting it. I am only working roughly 10 days or so the first month I am back so it should not be an issue for long as my strength & energy has come back in leaps & bounds. I wanted to go back full time but my Dr said NO so we compromised on the plan to be back to full time by the end of June through the Transitional Work Program. Everyone is so worried I am going to hit the ground running but I assure you I am going to pace myself. My friends & co-workers once again are rallying to support me & I can't wait to see them all Monday & tell them Thank You in person!

As if the Chemotherapy everyday this week & setting up my return to work was not enough. I had major drama with Norma AKA Misty, Marc's mother. Calgon take me away!!!

8 comments:

Debra said...

How awesome you can get back to work! And I am glad you got the parking. Rest up this weekend and hopefully no more drama with the momma! ;-)

Aunt Lynn said...

Hi Sandi,
That's great that you'll be getting back to work. I know that makes you very happy just remember the balance you talked about. I'm shocked about the parking issues you all have to deal with but I'm sure that's just because I'm used to being out in BFE where those issues are non existant. I'm praying all goes well for you on your return to work as well as your daily life at home. Just remember if it's not a problem that you have let the other person own their problems, you have enough to deal with already! It's a good thing I'm 1000 miles away!! Keep your head up & stay strong & focused on you & your family. I love you all!!
Aunt Lynn

Unknown said...

hi honey, the pictures from your mini vacation looked great. i hope paige is better. brandon's girlfriend is a cutie.she looks like a keeper.tell him to be good to her. katie looks fantastic.she is so beautiful.i liked that sexy poise.uncle steve made me scroll back to the picture a second time and commented on how grown up and pretty she is.zach looked like he enjoyed meeting wiley. iam so glad you got away for a rest. take it easy at work monday.we all love you so much and i know you are excited to get back to work, but pace yourself.family does come first but we work-a-holics forget that sometimes.i know you will rememeber that much better than i have.i think we have some of our computers fixed,so i will be keeping in touch better again.i love you.enjoy your weekend.love,aunt bonnie

Anonymous said...

I love you! =D



<3
Amber

Anonymous said...

Hey there! It is great to see that you are getting back to work, I hope that you are OK and that you feel well. Take care, Hugs and Kisses Betty Lorraine

Anonymous said...

HI Sandi,
I am so glad you are able to go back to work and are getting your energy back. Tell everyone Hello!
I hope to see you Saturday the 4th at 10 if you can make it. It will be great fun with all the little people. Take it easy this week, I hope it is going well!
Love Ya!
Paula

Aunt Lynn said...

Hi Sandi,
Just wanted to let you know I'm thinking about you & hoping the week at work goes as well as your 1st day back. You're looking & sounding marvelous! Keep your head up & stay strong, I love you all!
Aunt Lynn

Unknown said...

hi sweetheart, just wanted to tell you i am thinking of you.i hope your week went well at work. we love you bunches.love, aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!