Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Friday, February 20, 2009

February 20, 3009

Hi everyone, I have really neglected my blogging this week. As my life begins to return to a semi-normal state between treatments the rest of this year, my updates may become less frequent but as a minimum I will try to update weekly. On the plus side I made it back in my military uniform which was was the most concerned about!

Here are my Lab Updates from Tuesday, today's as you can see are still pending:
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
30 Jan---150-----2.8----1000---------10.4----------85------------N/A
2 Feb---153-----36.4----31700--------10.6---------131------------N/A
4 Feb---155-----3.9-----????---------9.9----------160------------N/A
6 Feb---157-----3.2-----1500---------10.0---------190------------N/A
9 Feb---160-----6.0-----4000---------11.8---------262------------N/A
12 Feb---163-----3.1----1810---------10.3---------257------------N/A
17 Feb---168-----2.3----1400----------9.4---------246------------N/A
20 Feb---171-----Pending


My (ANC) or neutraphil count is dropping along with my white blood cells. Aahh the timing of the drop sucks! Brandon has a little cough & runny/stuffy nose & the sneezes going on. I started feeling a little tickle in the back of my throat last night & I have been sneezing a little bit but not to bad. I did stop & get some cough drops on the way into the base today because Marc was really getting on me to do it. My head is a little achy & my throat is slightly sore but I still don't feel too bad. I went ahead & made Brandon wear a mask when we got home & I put on one as well. I am scared to death to get sick again. I asked Brandon if he was sick the other day & he said no, today when I picked them up from school he said he felt terrible & he is sick, but he still made me take him to practice & he has every intention to wrestle this weekend at the district tournament. I think it is a bad idea & I told him he was going to be to weak & get stomped he said he does not care, he is still going. Teenagers, you cannot tell them anything! (I would have never admitted this when I was a teenager)

This is a good picture of Katie & Paige. Katie's drwaing books she ordered finally arrived & the Sims game Sara ordered her arrived this week as well so she could not be happier. She pokes her head out of her room every now & then for food & when we call her, I expect she will be engrossed in these for a few weeks & it is going to be like pulling teeth to get her away from them to socialize LOL. Paige is still having some trouble; she got a detention this week for not participating in gym 3 times (dress cuts) & a few other things. Again I say teenagers when my hair does come back in I swear it is going to be all grey.

There was maybe one decent weather day last weekend & Zack could not stand being cooped up anymore so he made a beak for the trampoline. He thinks he is a tough guy to, just like his Bubby!

I survived a whole week working at the base. I completed all of My EMT re-certification paperwork & I have my new CPR card so I am good for a couple more years. It was a pretty small class so I had the time to sit & talk with my classmates & make new friendships. Although I will miss them I am glad I don't have to worry about my CPR & EMT anymore & that the week is over. The hardest part was getting up in the mornings. I really struggled with that. I am not normally a morning person anyway but it was even tougher than normal to get up out of bed however once I was up & had time to adjust I was fine. My evenings were not to bad either. I seemed to have a little more energy than normal at night but it was pretty short lived, as I would find myself in bed quite early for me.

I also noticed during the week that my brain capacity & function seems to be much improved. In the last 3 months I really was suffering from chemo brain quite frequently & could not process information in my normal way. This week there was a noticeable improvement; I even got a 100% on my EMT Exam. I could not even recall some of the basic EMT info a couple of months ago so I surprised myself.

Thank you Aunt Sue & Uncle David I got you card in the mail today. I continue to be so grateful for your very generous Chemo fund donations. You have donated so much already & we are very grateful. As everyone knows my treatment is not cheap & in January I unexpectedly became ill & was hospitalized for an additional 8 days that we had not anticipated, every donation helps so much.

I want to send a shout out to Debra Beck, look me up in face book & send me your e-mail. For that matter if anyone is trying to get a hold of you & me don’t have my e-mail face book is another good way to contact me. Debra used to be in the 445 AES with me, she found me again through the Buckeye Flyer, the WPAFB 445 Airlift Wings monthly newspaper. They did a wonderful article on me for the Blood drive my unit was sponsoring back at the beginning of the month & it also listed my Blog address.

I will try to update my Blog again on Monday, if my lab results come back before then I will post them sooner. I hope everyone enjoys the weekend & Thank you all for your continued support.

4 comments:

Debra said...

Thanks for the shout out! I will look you up on Facebook for sure. I am so glad you are doing better. You have really been on my mind alot! It is amazing you got a 100 on your EMT test, but not surprising!

Anonymous said...

Hi Sandi:)

Congrats on the 100 on your EMT. Tony passed his too. Hopefully we will be able to get together soon. Tell everyone Hi!
Talk to you soon!
Paula

Unknown said...

hi honey, i am glad you did so well this week in class.your brain sounds like it is working fine to me. that is a good picture of the girls. i am glad katie is feeling back to normal. i hope brandon can feel better for his match. gym is a hard thing to get a detention in, all u really have to do is dress and participate. she should be able to do that. teenagers are a challenge.i am so glad you are starting to sound like your old self again.i so hope that the worse is over for you now.tell everyone hi and that i love them.love you bunches.love,aunt bonnie

Anonymous said...

Hi. I am so glad that you did so well at the recert, I have heard those things are hard. That is a really great picture of your girls, and I hope that your son feels better soon, I hope that you feel better too. Please take care, talk at ya later Hugs and Kisses Betty Lorraine

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!