Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, February 9, 2009

February 9, 2009

I want to send a special thank you out to the 445th AES for sponsoring the Blood & Bone Marrow Drive in my honor at the American Legion in Fairborn, Ohio. Master Sergeant Drake told me they had about 34 people donate blood, some of which doubled up units & they also had about 20 people register to become Bone Marrow Donor's. I thought this was fantastic & everyone that donated & worked the event should be commended. Thank you all so much!

Today's labs
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
26 Jan---146-----4.5----3100---------9.1----------37------------N/A
28 Jan---148-----2.7----1100---------10.6----------64------------N/A
30 Jan---150-----2.8----1000---------10.4----------85------------N/A
2 Feb---153-----36.4----31700--------10.6---------131------------N/A
4 Feb---155-----3.9-----????---------9.9----------160------------N/A
6 Feb---157-----3.2-----1500---------10.0---------190------------N/A
9 Feb---160-----6.0----4000------11.8-------262------------N/A
Today started out rough. I did not want to get out of bed. My sweats have escalated to not only at night but intermittently during the day. This morning after my shower they were real bad, I thought I was going to have to take another shower. Our weekend was pretty mellow. We did go out to the clubhouse to socialize for a few hours on Saturday night but we were home in bed shortly after 10. Marc did make it out for a short ride on Sunday it was in the Mid forty's. I on the other hand said no it will have to warm up a bit more before I try to get out on the bike.

Chanie came to take me to Chemotherapy this morning & I am so grateful. After taking the kids to school I realized I am really not up to driving in Columbus today. I have just been really tired all day. When we got to the Chemo Clinic they did not even call me back for labs until 12:30pm. I figured we would of been out of there by then since the Chemo is only supposed to take an hour. Needless to say they did not even start my Chemo until after 2:oopm. I texted Brandon to let him & Katie know I would not be there to pick them up, so Misty picked them up for me. We got out of the James around 3:30pm & we made it back to London a little after 4pm. Chanie had not seen Katie in years & Zack was his usual charming self. Paige has a make up game at McClain & Brandon was at wrestling practice even through he still can't wrestle.

Chanie offered to help me fix dinner, spaghetti & meatballs. Marc was home & able to help me & I knew we got back later than we expected. Her girls have Karate class tonight so I sent hr home. On a side note, I know my brain is still off. I left my cell phone at the hospital & did not realize it until I was almost home. They have it & I will pick it up tomorrow at my next treatment. I still feel tired but all n all I can't complain. I don't feel sick from it. In all honestly I think the tiredness is still part of my recovery from being sick. This should be a long week with treatments everyday & driving back & forth to Columbus. At least my labs are up & we should be able to monitor them pretty closely all week. They hospital does not think my counts will drop until the third week. Or at least that is when they said I should feel the worst, we'll see.

Sharon White made a donation to my Leukemia fund right before I went back in the hospital with the bacterial infection so I have yet to tell her thank you. I some how missed it because I do not check my credit union account but every other week, so I missed it. Sharon, thank you so much you have already done so much & I don't want you to think we forgot about you because we haven't. The family also got a Valentine's card from my niece Sierra & I got another Valentines card from a great friend Katie Miller. You ladies are all awesome & you know just how to lift my spirits, thank you all.

I will try to update tomorrow we will have to see how the energy level goes!

6 comments:

Aunt Lynn said...

Hi Sandi,
Glad to see thoughs numbers rising, yea!! Thank God for Chanie, I have worried about you driving yourself around. Hopefully as your numbers keep climbing your energy will return also. We have had some very nice days here too, it was 50 today but rainy. Good thing you'll be able to get your phone back, wheeeew!! Take it easy & rest, I love you!
Aunt Lynn

Unknown said...

hi honey, i am glad your friend was there to take you. i am worried about you driving and getting tired while you are in columbus. take it easy this week . a lady at church has had 25 bone marrow biopsys and she wanted to know she knows what you are going thru and she prays for you all the time.tell everyone hi.love you all.love,aunt bonnie

Anonymous said...

Hi there, Sorry that you are feeling so weak, I really wish that I lived closer I could help out more. I am really glad to see that your numbers are up, still praying for you and I wanted to send you a card but I don't have the address except at the clubhouse, so I will send it there for you. I hope that you get some energy and it gets warmer for you. Take care Betty Lorraine

Anonymous said...

I'm praying that you feel better today. God bless!

Unknown said...

hi sweetie, i hope you are doing well today. we love you.love, aunt bonnie

Ruth Gerding said...

Sandi,

I continue to appreciate your updates and you continue to be in my prayers.

Ruth

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!