Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Friday, September 19, 2008

September 18,2008

Today was interesting, another researcher came in & put me on Valtrex...no I do not have Herpes, they are using it for some pulmonary clinical trial along with 2 other medicines, I can't remember the names at the moment but one is a white chalky mix that tastes liked a mix of the white powder on donuts & plain chap stick in a liquid form, it's kinda wild. So I am basically a guinea pig for that trail. My PICC line has been oozing since they changed it 2 days ago so I had to put a sand bag on it. My Platelets got down to 10 so I got another platelet infusion.

Chaplin Kollmann from the 445th has been wonderful, he is bringing me some paperwork I requested from the JAG & going to see if some of the squadron member want to ride up with him to see me tomorrow.

MSgt Drake called as well he is running in the Air Force Marathon with his wife on the 5k & then going to continue on, I wish him the best of luck, same to Major Sandusky to. MSgt Larue got ahol of me all the way from Germany too.

Kim Davies came to see me, we walked down to Wendy's & she bought my dinner, we took it out to the courtyard in front if the James now that was an adventure with my IV cart. (they call my cart Baxter, I call him Bastard now)I almost knocked him over 3 times on uneven parts of the side walk, you know me I get moving to fast. Marcus also came up & brought Brandon (Bubby) with him so it really made me feel good to have all the company. After Kim left I went down with Marcus & Bubby to the conference room & played a few rounds of Guitar Hero, Of course Brandon spanked us all, it was fun though.

Marcus brought me up a lot of cards from people. I cannot say thank you enough for the outpouring of support. ORW sent a beautiful card & Bev McKinley is coordinating the details to hold a Blood Drive in my name there & C. Rhinehart is trying to get the stitching post to make me some shirts that can be unbuttoned or Velcro on the side for my IV access so I don't have to keep wearing theses hospital gowns. It took me 20minutes to get out of my shirt for my shower the other day & I had to get my big but through the right sleeve, it was sight to behold I am sure NOT! The 445th AES sentanother card with a Kroger gift card to help out that is so appreciated, the kids sent me a card & so did Misty & my neighbors. This is not counting all the cards that I got the first go round when I was admitted at Mount Carmel. I just appreciate all my family, my extended families & friends. You all are keeping me in high spirits & we will get through this.
Tomorrow takes us to day 3 of Chemo treatment hopefully one more day or say of the orange cool aid pee then we have 4 more days of the Cytarabine 24/7 .

Sandi

2 comments:

Thumper said...

Had a great time looking at pictures on the computer last night. You will have to play some Lynard Skynard on guitar hero, (they rock).Spike is a bully (your new puppy), he make sure he gets his share and then some of the food at each feeding. Will be up to see you again in a few days.
Girl, you should see all the wood stacked at by house, they (Donnie & Dakota) must have worked like crazy to get it all cut down. I will be warm this winter. Did you watch your Queen dvd, you know you wanted to see Freddie Mercury in his tights( ha-ha). Call you later.

Unknown said...

love you aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!