Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Saturday, September 20, 2008

September 19,2008

What a busy day, I woke up in a good mood with some mild chest pain or indigestion I am not sure which. Chaplin Kollmann came to see me we had a very good visit, I not the most religious person in the world but I really like the Chaplin, he is down to earth & really cool. Plus he rides a motorcycle LOL. After he left I got cleaned up & went on a search for Tressell & the Buckeye players they said they were in the hospital but I never did find them. I ended up getting paged back to my room for a chest x-ray. That took about an hour or so I think my transporter forgot to come pick me up. When I got back to the room they told me my Platelet count was 35, which is pretty good for me here lately.

I talked to Kim Davies & then my Dad called he wants to come down tomorrow but with this being the first home game of the season I told him that traffic would be a nightmare he would be better to come on Sunday.

Angie Hunsinger & Paula Parker from ORW came up to visit for a little bit, they also brought up some more cards. I really miss the people at ORW. I can't believe it has been almost 2 years since I left.

Marc brought all 4 of the kids up at once what a surprise, They stopped & got cookies & candy down stairs, he also brought me more cards from the house, some speakers for my laptop & an arm band for my I Pod for when I am walking, he also brought back my clean laundry & the paint samples for the stairwell to get painted tomorrow, my Missing Link vest too & hung it in my window. He has been so sweet to me through this. It was cute to watch them all get dressed up in their gowns & gloves. Zack had a little Dr. Bag with him & had t0 practice playing Dr. on me, it was to funny. The nurse drew my Platelets while everyone was there & they had dropped down to 9 so I had to get 2 bags of Platelets infused.

Katie seemed kinda in shock to see me like this & wouldn't say to much, Brandon was busy trying to keep Zack from getting into stuff & Paige was just real quiet. I could tell Marc was stressed & I started not feeling to well & Zack was getting restless so Marc rounded them all up to go home. I had a hard time when they were all leaving & didn't want them to go, so Marc sent the kids out in the hallway after they said goodbye & I just couldn't hardly bear to see them leave. Paige started crying & well I just couldn't hold it together anymore. Marc put me to bed & they all left.

My night was rough after that I had a lot of upper abdomen pain & nausea & just felt horrible, hopefully I will get it out of my system so I do better tomorrow.

Sandi

2 comments:

ben&tam said...

sandi,
i am so sorry you had such a bad evening. it always hurt my dad to see us come and visit him in the hospital and then leave to go home. and he couldnt go with us. but i know you held it like him .. very strong willed . i feel so bad that i am here and fine and you are there and going through so much. when someone i care about goes through something like this. the only thing i can think to myself is that i so wish i could take it away for them. the same is for you . if i could take it i would in a heartbeat. well enough of that. but know we are here for you marcus and the kids. you need anything ,, anything at all.. call. our house number is 740-845-1498 .. sorry i was so weapy. tam

Unknown said...

good morning sweetie i hope your evening went better last night .It will be hard to see the kids go home,but you soon will be back there with them.we all love you very much and wish we could do more to help you right now.be strong,love you aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!