September 22, 2008

From the Kids visit last Sunday

We got real good news today from the Doc's my preliminary chromagenial results came in & there is a good link between my chromosomes 8 & 21. So what that means is there is a chance that the 3 rounds of Chemo alone may work to put the Leukemia in remission. Of course this is very preliminary but still it is very good news, it makes my prognosis a lot better. They said out of all the cases they get every year they maybe only see this 4 times per year. They still want to type my sister Sharon to see if she is a match for a Bone Marrow Transplant but this is more for insurance in case the Chemo does not work. We will know more about this at the 4 week mark.

Today I was so puffy with water retention & was up to 183 pounds, the Doc put me on Lasix, needless to say about every 15-20 minutes I was going to the bathroom. I feel like I lost about 10 pounds in water weight alone. I filled up the pee hat at least 12 times I think.

Donnie & Alan (Krome & Gump) came to see me today, they looked so cute in their papa smurf outfits don't ya think, they put the gowns on backwards. I went outside with them for a little bit, it was so nice out & warm but it really wore me out so I came back up & laid down for a little while.

They had the blood drive at ORW today, Beverly McKinley said they had about 30 people show up but not all could donate, I still think that is a good turn out. They sent up cards from the red cross with their donation numbers I had Marc help me tape them up all over my door.

I did not have to get any blood products today so with the donation numbers I am actually 5 bags in the bank, I have only used 8 bags of blood total so far, but if you count the platelets I am even up since I have had 5 bags of platelets total I think, it is all kinda sorta running together.

Chanie called me & is working on getting me some scrubs with Velcro on them so I do not have to fight the IV lines as much. Elaine said she would make some to. Chaine may come up Wednesday night & Elaine is going to come up with Dad Sunday I think.

I cannot express enough how thankful I am for the outpouring of support from everyone. It just amazes me everyday & I ma lucky to have such good friends & a loving family, there are so many people that do not have a good support system & I truly believe it will get me through this.

Marc came up to see me last night, he brought me clean clothes & took home my dirty ones, man they smelled bad. If he leaves them in the car he will know it in the morning. He also got a fan for under my laptop so it will not over heat. He put my clean clothes away... I just don't know how I would get through this without him, he has really been my rock & now more then ever even me little miss independent must admit I would be lost without him. I love him so much.

Brandon went to the Dr. he does not have strep but some type of virus so he cannot come see me for awhile. Misty made me a hummingbird cake, I had Marc put in in my fridge for tomorrow, the plan is to shave my head tomorrow so the cake should be good soul food for afterwards. Kim is going to come do it for me. I just can't do it myself. I am going to try to take some pictures, and make some fun out of it, might give myself a a big mohawk or something first.

I am having a real hard time concentrating on typing I got some oxycodone for my back this bed is tearing me up I can't get comfortable in it, only 2 more nights of Chemo to go, I cannot wait to get off the IV's!!! Maybe I will sleep better then.