Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Tuesday, November 11, 2008

November 11, 2008

Did you thank a Veteran today? I did you should to. It is good to hear that our country is grateful to our nation’s military service members, active duty, guard, reserve and veterans, for their dedication, courage, accomplishments and sacrifices to protect our everyday freedoms.

I woke up with the tunnel vision still, I can't say that it is worse than yesterday but it is definitely not going away. I called my Dr.s Office but they were closed, Ohio State University, I didn't make the connection all state & federal offices closed... I left a message with the on call service & a Nurse Practitioner called me back. My only option today is to go to the Emergency Room & be seen that way, so I asked her to relay my issues & I am going to try to get into my Dr. first thing Wednesday morning. They don't have any eye doctors in the ER & they would have me follow up with my Doc the next day no matter what so, I though I would rather rest at home comfortably & stay out of the light, especially since any type of light seems to make it worse.

Marcus, a veteran also, got today off so I was happy to have time alone with him, at home. This rarely ever happens, with 4 kids we are typically always on the go.

I almost fell out of the shower yesterday so later in the afternoon when I was moving around a little better he took me out to K-Mart to look for a shower seat, they did not have any but he got me a new shower head for some reason, he's the plumber so I didn't question it. We went to the Medicine Shoppe here in town & were able to find a shower seat without having to go into Columbus.

We were not out long & I started not to feel so good, Marcus brought me home. I talked to Kim on the phone & I could not even remember the conversation. I was starting to get a headache & a little chest pain. I have been battling heartburn for the past 2 days so it is hard to tell if it is really chest pain or indigestion. My bones were aching so I threw the towel in. took an Oxycodone & laid down. Spike took a nap with me on the couch, neither one of us moved for 2 hours until Paige got home.

Marcus went out to the Clubhouse while I was resting to re-wire the speaker system out there, so they will be on 2 different systems. The TV Room is bigger then the pool room so when the game is on it deafens you in the pool room. Hopefully he can get that taken care of since the Big Game is in a couple of weeks.

Misty made BBQ meatballs for Katie so she went to town on those when she got home from school. Zack had a rough day at school yesterday so I would not let him watch Beetlegeuse because of it, today he was all excited when he got home because he had a good day at school so he is watching it now with Katie. Wrestling season has started so Brandon is fully engaged.

I feel a little better but my eyes are still driving me nuts, hopefully tomorrow we can figure out what the heck is going on with them.

3 comments:

Aunt Lynn said...

Hey there Girly, Glad to read you're finally going to let your body rest while all those drugs do their thing. I'm sure Spike was glad to nap with his Moma. I'm also glad to read that Zack had a good day so he could watch the movie, he was so excited last night to get to see it. I have thanked a veteran many times but today of all days I thank them again because without them we wouldn't have all the simple freedoms a lot of people take for granted, So thank you & Marcus as well!!! Stay out of the light as much as you can & hopefully the docs will have something for you tomorrow. Take care Sandi, Dennis says hello and we love you!!!
Aunt Lynn

Anonymous said...

Hey Sandi..
It was great to spend time with you tonight!! I miss just hangin' out!
Thanks for being so patient while going through all the wedding pictures.....I'm such a proud Mama!!!
I'll see you soon!!
B

Unknown said...

hi honey, i am glad you took a nap today. that eye problem must be bugging you.i am sure katie did not mind helping you at the store .that is an uncomfortable feeling when you are disoriented in a store. talk to the drs. tomorrow and see what they say.we talked a lot about vets today.thank you and marcus for your military duty.sleep well tonight.love you bunches.love aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!