Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, November 17, 2008

November 17, 2008

Sunday was a major down day; I stayed in bed 1/2 of the day just resting. My low counts are starting to catch up with me physically. I talked to Aunt Lynn & Aunt Debbie for a while on the phone, I did not realize when Debbie donated blood for me it was her first time donating as well. There are so many first time blood donors that have been a direct result of my disease. There is a lot of good that has come out of such a terrible situation.

I received another card with a very generous donation from my colleagues in the Bureau of Public Health Preparedness - ODH. They have our heartfelt thanks. I am so encouraged by the support that keeps coming in. I know many people cannot send in donations & that is ok, you have no idea just how important the phone calls, e-mails, letters, visits... keep me motivated. I am very lucky to have so many people out there that love & care about me. It encourages me to fight that much more even on the toughest of days.


We all watched the Jeff Dunham Christmas special last night on TV it was pretty funny. If you have never seen him you should check it out. He is a ventriloquist

I was really surprised this morning when I woke up & saw snow covering everything! We had flurries Saturday but nothing stuck. Spike got his first experience in it. He was prancing around all over the place. He was so excited he wouldn't go to the bathroom for a while because he wanted to play so much.


After we got Zack on the bus I loaded Brandon & Katie up & dropped them off at school on my way to Madison County Hospital for my lab draws.




Sue, my RN was ready for me when I got there, it’s a pretty nice chemo lab they have here. We talked about the side effects I have been having. She drew my blood from the purple port & my red port on the PICC would not flush, so a little heparin in & it was cleared. I was in & out in less than 20 minutes.



When I got back from the hospital I took a short rest on the couch with spike & then went up to take a shower. I knew my counts were low, but I did not realize how low until I saw...




I know the pictures are gross, but this is the reality. I have pinhead bleeds & brusies all over my body. I had to take some nausea medicine because the blood keeps pooling in my mouth & it was making me feel real nasty. Hopefully when I get juiced up this afternoon it will be enough to clot them off.

Sue just called me with my labs

Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
8 Nov------67-----6.4-------6000--------9.0--------109----------N/A
10 Nov------69-----8.8-------8200-------9.3---------74----------N/A
13 Nov------72-----0.5----------0-------9.2---------22----------N/A
17 Nov------76-----0.7----------0-------7.9---------03----------pending

We are waiting for the James to call me & see what they want to do, no matter what I have to get an infusion of platelets, possibly 2 if the first one does not bump me up enough.

In the mean time I am just waiting & playing with Spike. More to come tomorrow.

3 comments:

Aunt Lynn said...

Hi Sandi,
I hope they get some blood, plasma, platelettes....something in you to help you out. The pictures of your teeth look like they are going to fall ot? Or is that just a spot your body is losing blood? I enjoyed the time we spent on the phone so much saturday, I just wish I could be there with you. You are so strong of a person Sandi, I can only hope that I could have a portion of the strength that you have, in any situation in life I may need to face! Stay strong and we'll all help you beat this thing. I love & miss you.
Aunt Lynn

Coach G said...

Hi Sandi,
I hope you enjoyed your time watching Spike run in the snow today. I was pretty jazzed to see the snow when I woke up today. I don't know why, but I was. You are in our prayers and thoughts. I've been sharing your illness and blog site with others, so rest assured there's a lot of prayer with your name attached to it. Too bad the Lord doesn't work on our time line though ... or we'd have everything RIGHT NOW! We'll be thinking of you and praying for you until you beat this thing.

Unknown said...

hi honey,your gums look sore,i hope it is not as painful as it looks.i am glad they got your picc lines flushed and working.maybe you will get the platelets you need tomorrow.the snow is pretty,but i am not ready for it yet.i wish i still enjoyed it like spike does.i enjoy seeing the pictures of the family.the kids look like they were enjoying their weekend.honey you are one tough cookie and we all love you so much.i hope your tunnel vision is getting better.you drove the kids to school soooo i am assuming that the vision is better. right? i hope you have a good night. i love you bunches. love ,aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
~~~~~~~
Take risks: if you win, you will be happy; if you lose, you will be wiser.
~~~~~~~
If you are never scared or embarrassed or hurt, it means you never take any chances.
~~~~~~~
Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!