Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Sunday, November 30, 2008

November 30, 2008

Wow, what a busy week we have had. Between Thanksgiving break with the kids, the actual holiday & getting everything finished that I wanted before I go back into the hospital, lets just say its been nuts! Sorry I have not taken the time to sit down & update this thing.

I did make it in to the Hospital on Friday for my lab work...
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
17 Nov------76-----0.7----------0---------7.9---------03-------1 Unit P
19 Nov------78----26.9------14,000------8.3---------11---------1 Unit P
21 Nov------80-----12-------9,300------7.9---------55---------1 Unit B
24 Nov------83----5.1-------2,200-----10.1--------179------------N/A
28 Nov------87----2.2-------1,500------9.9--------286------------N/A
As you can see my counts are still holding, even though my ANC dropped a little it has stayed above 1,000 which keeps my Dr happy & I have been able to maintain my blood levels for a week without any blood products. I did not nee near the amount of infusions that I had the first round of Chemo so I take this as a good sign.

I need to back track to earlier in the week. I received a package in the mail from my coworkers at ODH on Wednesday that was filled with many different types of hats. The kids & I had fun trying them all on & making funny faces at each other, it was rather comical.

Misty was in the kitchen most of the day on Wednesday preparing for Thanksgiving. On Thanksgiving day she was in the kitchen all morning & had all the food on the table by 1:30. We only had one minor spill over in the oven for all the dishes that she made. It is really quit impressive to watch her in action, the food was just unbelievable. It turned out so good & it still amazes me that it takes 2 days of preparation for 1 meal, but then it was a great meal. She told us you it with your eyes first, it is all about the presentation. You will have to see for yourself if I ever get the pictures uploaded (hopefully by Monday or Tuesday.

Needless to say I was so psyched for Christmas that I did not waste any time as soon as the dishes were done I started putting up the decorations. Marcus & Brandon hung up the lights outside & I started unpacking all the boxes & sorting out what goes where. Typically we always remove the leafs on the dining room table & put the tree up in the dining room but Misty said that was not going to work, since there would not be room for everyone to sit down & eat. So we moved the living room around to accommodate the Christmas tree, it is very large. I did not get to the tree until Saturday.

On Friday after I got back from the hospital Paula & Angie came over. After Zack's Spanish inquisition they decided to take me out of the house for a nice change of pace. Angie gave me a beautiful leukemia awareness bracelet that she had made for me. We went to Apple Bees for lunch & then to Target to scope out Black Friday deals.

Later Friday night we got a call from Donnie to come out to the club house, Kim got her Christmas present early, Guitar Hero World Tour for the Wii. By the time we arrived there were quite a few people out there. We stayed out until 1:30 in the morning & had to call it a night. It has been quite some time since I have stayed up that late for fun.

Saturday morning I slept in. Once I was up & moving we started in on the Christmas tree. I don't really care for it too much in the living room, but I think it will just take me awhile to get used to it. I was like a crazed woman with the decorations. I felt so compelled to get them all up before Monday, because I know I will not have the energy to do it when I get out of the hospital next weekend.

I am not sure what time I have to go into the hospital tomorrow since they did not start my Chemo until 8pm the last time I went in. I am going to call them first thing & try to find out if I can come in later. I hated sitting there all day for no reason. So if all goes well I should start updating the Blog daily on Monday.

2 comments:

Unknown said...

hi honey, i am glad your thanksgiving day went well.it is sunday night at 8;37 and we just finished thanksgiving with steve's kids ,scott,dan and cheryl and jessica's boyfriend justin.we ate at focht rd. ,cooked two turkeys,one at focht and one at bowdle rd. everytime i go to cook or do something half the stuff is at whichever house i am not .does that make any sense? i started working on the back bedroom at bowdle.it is taking a little time .we hope to be moved completely before dec.15th .with the grace of god. i hope your admission and treatment goes very well tomorrow.the numbers are holding there own,so that is a good sign.we love you bunches.love,aunt bonnie

Aunt Lynn said...

Hi Sandi,
Good to see your numbers are doing good and the amount of infusions are down, I would say those are very good signs. Glad your family had a good Thanksgiving. We go to Dennis parents farm with an imediate family crowd of 38 people. It is a mad house & Christmas is even worse because all the kids are wound up about gifts. We went to our neihbors also and I even made us our own small turkey. I'm praying all goes well this round in the hospital goes well and you don't have to lay around waiting so much, I look forward to seeing all your pictures. Take care & I love you!!!
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!