Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Friday, December 5, 2008

December 5, 2008

Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
21 Nov------80-----12-----9,300-------7.9---------55---------1 Unit B
24 Nov------83----5.1-----2,200------10.1--------179-------------N/A
28 Nov------87----2.2-----1,500-------9.9--------286------------N/A
1 Dec------90----3.4------2,270------10.0--------255------------N/A
2 Dec------91----4.0------3,500------10.5--------250------------N/A
3 Dec------92----5.0------4,400-------9.5--------183------------N/A
4 Dec------93----4.4------3,800-------9.2--------196------------N/A
5 Dec------94----3.5------3,400-------9.3--------170------------N/A

I am going on Day 5 with no nausea so far during this round, this is a very good thing. The lack of sleep & entense night sweat episodes are the main side effects I am having. If I had to guess I think one is causing the other. It can always be worse. My Dr. said the shot I am on is a much stronger central inhibitor, it brings on all the effects of menopause with it. She is considering some additional meds to see if they will help reduce the side effects, possibly even so herbals, I will have to wait to see what she comes back with.

Today my room was so hot I thought I was going to pass out. The nurse came in & said the temperature was 88. They were finally able to get maintenance up her to fix it after 2 days of requeting them. It is much more tolerable now.

My Dr. is bumping my Chemo up to 8pm tonight so I can try to get out of here a little earlier tomorrow. So they are going to start me back on the IV fluids around 6pm. I was so swollen with the fluids they flooded me with when I came in, that I had an extra 15 pounds water weight. They wantede to put me back on Lasix but I was not having that after my last experiance with Lasix. So it has been a slow process coming off. Needless to say I am not looking forward to being hooked up again though.

Marc is going to come up again tonight to see me & maybe even bring some of of the kids, this would really make me happy, I miss them all so much.

4 comments:

Aunt Lynn said...

Hi Sandi,
They must have been trying to sweat those extra pouds off you...lol Glad they were able to FINALLY get to your room. Good thing they loaded you up with fluids you may have dehydrated without it!! I'm glad to hear you'll be getting out of there & back to your family tomorrow as well as getting a visit from them this evening. I'm sure they all miss you as much as you miss them. I know I miss you all and wish so much that I could get there somehow, but I don't see that happening. Well, enjoy your visit this evening & tell everyone I said hello & I love you all.
Aunt Lynn

Pixie said...

Hey Babycakes,
I'm happy to hear ya are doing good. The sweats and hotflashes are horrible, I remember when Robbie did it. The Christmas Tree looks great. The kids were really enjoying themselves by what I could tell in the pictures. Robbie was so hyped that he got to talk to ya the other day. He said ya sounded in good spirits. Hope the visit with Marc & the kids went good tonight. Stay strong!! Sending ya lots of Luv, Hugs, and Smooches!
Luv Ya Sis! Pixie & Oatmeal

Pixie said...
This comment has been removed by the author.
Unknown said...

hi honey, i hope all the things work together so you can get home quickly.love you. love. aunt boonie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
~~~~~~~
Take risks: if you win, you will be happy; if you lose, you will be wiser.
~~~~~~~
If you are never scared or embarrassed or hurt, it means you never take any chances.
~~~~~~~
Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!