My vision still has not improved, I called the James & they wanted me to go see an eye Dr. I was not able to get in until the afternoon, I could not drive so Marcus took me. I can honestly say it was the most intense eye exam I have ever had. Its not the Chemo Brain making me nuts, there is very visable cloudiness over both of my cornea's that is causing my tunnel vision & white out. They told me to quit the Dexamethazone eye drops & use regular eye drops & see if this helps. It could be a result from my eyes drying out so bad from the chemo. In 3-4 weeks if it is not better it could be a condition that they will take a different approach with but with my Chemo it is to soon to tell, but he said not to worry it will not make me blind...
I have to go in for lab draws first thing tomorrow. I had a good bit of chest pain all day & I have noticed today that I cannot climb the stairs without becoming seriously winded, so I know my counts are dropping fast. For the past few days I have not felt very good, so little things have been working my nerves but I had been trying not to say anything. I can't tell if it is my meds making me on edge or not but it is a delicate balance that I thought I had in check but with each day passing I am not handling it very well. I got so used to to a quite hospital room to recover & I am dealing with the real world full of life & drama now that I am home. It will get better once my counts come up, I am sure my oxygen levels are down because of the counts as well & this could be making all the difference in the world with how I am perceiving things at the moment.
I received a ton of beautiful handmade cards in the mail today from my co-workers at the Bureau of Public Health Preparedness at ODH, It is a great boost of support half way through my hospitalization treatment protocol. It sounds weird to say half way through because there is still such a long way to go but, the hospitalization portion is partially complete. Thank you so much Viola for gathering them from everyone & sending them all.
I expect 2 trips to the hospital on Thursday one for lab draws & then back for blood products in the afternoon, their protocol is less than 20 platelets & I get an infusion, when I was at the James the protocol was less than 10 so we will see what my Dr orders. Who knows I may not need them until Monday. My cousin Amber called me yesterday she was in the process of donating blood for the first time in her life that s so cool, Thank you so much Amber!!
I told you guys Spike is all legs & here is the proof, he is growing like crazy. I must admit he has been rather theraputic for me since I have been home. He just lays with me & it is real nice.
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3 comments:
Morning sandi, I have to ask you if light is bothering your eyes, why are you taking pictures of them? The flash of the camera isn't helping I'm sure so STOP IT!! Spike is growing like a weed, and he'll grow into those legs but will still think he's the size he is now. He's too cute & I'm glad you have him there cause I know how theraputic they can be. Get yourself set up in your bedroom and stay there, away from the drama of the real world as much as possible. You really need to focus on you & I know that's not easy for you but please do it. I hope your eyes get better as time passes. I'm glad to hear Amber was able to donate blood. I've tried to talk them into it for years. We still have snow on the ground and it sounds like we've got more coming with a bunch of wind.....yuk!! I walk dogs as part of my job and believe me it's no fun in that kind of weather!! Well, I'm praying you have good days ahead and that you don't drop too rapidly. Tale care of yourself, I love you and we'll talk soon.
Love Always
Aunt Lynn
Hi there, just to let you know J.R. and I have been keeping up on your progress thru this website. All I can say is wow what a trooper you are. Wishing you the best and our prayers are always with you. I am laughing and crying with you all the way here in Wooster. keep the spirits up and keep up the rest that you should and I know that your friends and husband are watching over you.
your friend, Charlie
hi sweetie,i hope your eyes will get better each day. hopefully the regular drops will take care of the dry eye.you must take some time each day to get away to rest like you did when you were in the hospital.the daily stuff will go on whether you listen to it or not,so don't.i know that is hard. i rattle on when we are on the phone just because i like to bounce things off you and get your ideas but nothing ,no drama of the day is more important than you resting ,clearing your mind getting better.we love and want you to take care of yourself.i hope tomorrow is a better day.i love you, aunt bonnie.
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