Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, December 22, 2008

December 22,2008



3 days until Christmas!

Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
8 Dec------97----2.9------2,600------9.8--------106------------N/A
11 Dec-----100---0.3----------0-------9.1----------31--------------N/A
15 Dec-----104---0.4----------0-------7.8-----------2-------1 Unit Platelet
16 Dec-----105---0.4----------0-------7.3---------3--1 Blood & 1 Platelet
17 Dec-----106---0.6--------168-------9.0-----------1-----1 Unit Platelet
18 Dec-----107---1.3---------90-------8.5-----------2-----1 Unit Platelet
19 Dec-----108---2.6-------1300-------8.6-----------4-----1 Unit Platelet
20 Dec-----109---5.2-------4300-------8.6-----------43----1 Unit Platelet
22 Dec-----111---12.3------10800------8.6-----------23--------------N/A

I was expecting another platelet infusion when I went to the hospital Saturday morning, even my RN Sue was to the point that she pre-ordered the Platelets on Friday afternoon. You can imagine to both of our surprise when my Platelets came back in at 44! This is really good news, my bone marrow must be kicking into overdrive because my counts are coming up. The side effect to this is my bones hurt like hell but I don't care.

Weekend review: Friday night the kids had a great time at the clubhouse for the London MLMC kids Christmas Party. Saterday we went up to Findlay & I think they got the ice storms up there because all of the trees & the back roads were still covered in ice. Sunday, Misty, my mother-in-law, found an apartment & is in the process of moving out.

Today my White Blood Cell & ANC counts went through the roof & my platelets came down some. I will take a good ANC count over low Platelets any day, I can get an infusion if I need one but if I get sick & my ANC Count is low my body can't fight it.

This morning it was -20 with the wind chill, Brrrr all day. Spike even went out & took care of business without running around. Paige had Olivia one of her Cheerleading friends spend the night last night, I think Zack is in love & Katie was irritated. To add to the list of what is going on Brandon has what looks like the beginning of MERSA on his forearm from wrestling. I have him scheduled to be seen at his Dr. in the morning if it is what we think it is I will have to take him to Children's Hospital Urgent Care in Dublin to get him treated.

I want to send special thanks out to David Nunley & MLM Digital Stream for their generous donations to my Leukemia Support Fund.

As Christmas draws closer with everything going on & the kids on break my posts will get a little shorter so bear with me, I will post when I can. I am scheduled to go back in the hospital on January 4th for my 3rd & hopefully final round of Consolidated Chemotherapy, this will be my toughest round yet. This unfortunately will not be the end to my Chemo but it should be the end to hospitialized Chemo & that is awesome!



Benefit Scheduled
Many of you who know me may remember I used to be on the Board & the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were in Rainbow. I was contacted by Mom Wendy Hall, Mother Advisor from The London Assembly #208 Rainbow Girls & they are holding a Spaghetti Dinner Benefit for me on January 24th from 5:00 pm-7:00 pm at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net

3 comments:

Aunt Lynn said...

Norning Sandi,
I'm so happy to see your counts coming back so good. Sorry to read your bones ache so bad though just make sure you take your pain meds to ease & tolerate the pain. I'm also very happy you all had a good weekend & weren't affected by the ice. What a special person Nurse Sue must be to pre order, come in on her day off & all the special care she gives just for you, I thank her!! I know about those wind chills & temps, we happen to be in a heat wave right now at 16 above but we are getting ready for another round. seems like everyother day we're getting hit with another system. Well, you stay inside & warm as much as you can. Take care Babe, I love you!!

Ian said...

Merry Christmas Sandi, looking forward to a better new year!

Ian

Good Dirt Jewelry said...

I'm so glad you had a good report! I will keep you in my thoughts and prayers.

I hope you and your family will have a very Merry Christmas and a wonderful New Year!

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!