Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Tuesday, January 13, 2009

January 13, 2009

Sorry guys things have been real busy since I got outta the hospital Saturday

Here are Monday's labs:
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
24 Dec-----113----3.3-------1400------7.3---------45----1 Unit of Blood
26 Dec-----115----32.5-----29600------8.8-----------70--------------N/A
29 Dec-----118----3.6-----1836------9.6-----------121--------------N/A
2 Jan-----122-----2.7-----1400------10.1-----------193--------------N/A
4 Jan-----124----4.4------2640------10.0-----------225--------------N/A
5 Jan-----125----2.9------1380-------9.9-----------214--------------N/A
6 Jan-----126----6.8------6100------10.1-----------203--------------N/A
8 Jan-----128----3.9------3800-------8.6-----------181--------------N/A
9 Jan----129-----3.9---3800------8.7-----------163--------------N/A
12 Jan---132-----0.7----448------9.5-----------117--------------N/A

I ended up getting out of the James around 1am Saturday morning. Marc & I beat the weather home which ended up not being that bad after all. Most of the day Saturday we spent moving our bedroom. Sunday we had a National meeting that took us through the afternoon & yesterday was a blur. As if Marc has not been busy enough, he has hung pictures & put stuff out that we never unpacked since we moved into this house in the Fall of 2004. The kids were great helping out over the weekend & each night there has been a nice calming effect in the house.

I started back to Military duty today. I was up at 2am I could not sleep last night. So I headed down to the base about 6am this morning. I put in a whole day without to much difficulty. I stopped at the Commissary on the way home & cooked dinner as soon as I got in the door (chops, fried potatoes & baked beans) so it has been another full day today. I am back at the base tomorrow & that catches me up for missing January Drill weekend. I was not anticipating my counts dropping so fast when I scheduled the make up I thought I would get ahead of the drop but I am already into my decline. So I am going back in tomorrow, they are letting me go at my own pace & I am not overworked or stressed about it. I rather enjoyed getting out & being productive today, it has been awhile where I have felt I actually accomplished something (that is work related).

So there you have it, the down & dirty short version, I am pooped. I will not update again until Thursday & that will be later in the day after I get my counts.

Benefit Scheduled for January 24, 2008
Many of you who know me may remember I used to be on the Board & the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were in Rainbow. I was contacted by Mom Wendy Hall, Mother Advisor from The London Assembly #208 Rainbow Girls & they are holding a Spaghetti Dinner Benefit for me on January 24th from 5:00 pm-7:00 pm at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net

2 comments:

Unknown said...

hi honey, i am glad you are back at the base, that will make you feel back on tract.i am thankful that the kids are being so helpful.i wrote a long note to you the other day and the computer would not let me send it.i have been giving jessica a thrill by flying up the slippery lane and bouncing off the side of the driveway.remember?lol lol her eyes were as big as half dollars when i fishtailed up it the other day. i told her i bet her dad will be proud of her when i teach her to bounce up the lane.can't wait for that one! tell everyone hi.i love you bunches.love,aunt bonnie

Aunt Lynn said...

Hi Sandi,
I'm glad to hear you're home & all is going well. I bet you are glad to be back at work, doing something can make you feel better. So, how do you like sleeping in your new bedroom? I know it's a huge improvement from those hospital beds. We got hit with the wether again & it looks like we're gonna get it again before the weeks over. But, next week they say 30's WOW a heat wave. Tonight we're looking at -22 straight temp, hope there's no wind tonight...brrrr I'm getting to old for this crap, been trying to think warm thoughts like Florida or Hawaii. Just wish I could make one of those a reality. Hope you guys don't see those kind of temps, Canada can have their cold air back. How's Zack attacks school days going, all white days I hope. Well, stay warm & I love you.
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!