Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Saturday, January 24, 2009

January 24, 2009


Spaghetti Dinner Benefit Tonight Saturday, January 24, 2008 5-7:00PM
The Benefit will be held tonight at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available.It is my understanding that Kroger donated most of the food for this Benefit & National City has raised money as well. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net>

Marcus, Katie, Paige & Zack will be there, I am still admitted at the James but I am there with you all in spirit. I am pretty sure Paige will be running around with the video camera if you all want to put a message on there for me feel free I will be watching it as soon as Marc brings it up to the hospital. I also hope to have pictures to post of it on m blog as well. Both Marc & I used to be on the Advisory Board & I was also the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were active in Rainbow.

Here are today's labs
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
12 Jan----132----0.7-------448-------9.5-----------117--------------N/A
15 Jan---135-----0.3------0-------7.9/9.4-----------35--1 Unit of Blood
19 Jan---139-----0.2------0----------8.2-------2/35-1 Unit of Platelets
20 Jan---140-----0.2------0----------7.7---------26----2 Units of Blood
21 Jan---141-----0.3------0----------9.5----------17----------------N/A
22 Jan---142-----0.7-----443---------9.0------13/43--1 Unit of Platelets
23 Jan---143-----1.8----1400---------8.5----------38----------------N/A
24 Jan---144-----3.3----????------8.4----------34----------N/A

Dr Flynn & Dr. Lam came in to see me early this morning. I have been able to finally make it 24 hours without a fever & my counts are on the rise. Dr Flynn said that the spots on the lungs that they found from the CAT Scan he thinks may have been there before but he cannot discount them, the radiologist said they are a fungal infection. I asked him if they were going to do another test to find out for sure & he said no. They are going to take me off of the Caspofungin & the Tobramycim IV antibiotics, then put me on a pill form anti fungal Voriconzole, something about insurance costs & the medication being very expensive & leave me on the Vancomycin IV antibiotic.They are changing my meds so fast I cannot keep up with what I am on & what I am not on.I also asked Dr Flynn about the Blood Infection gran positive cocci I was positive for, he said that was the only Blood Culture that came back positive & it was taken from the ER & since then all the rest have been negative. They have not got the results back from the PICC to see if it was the source yet so we will have to wait. They want to continue to see my counts rise over the next few days & me to stay fever free. IF that happens we will start talking discharge somewhere around the first part of next week so keep praying!

I slept a lot better last night which was long over due. My PCA "Nick at Night" woke me up at 4am to draw my am labs, I was nervous about him sticking me in my hand but he got it the first time.My PCA this afternoon Wendy had to draw a lab again in the same hand so I got real nervous again but she did real good, I had so much bad luck getting stuck the day before so it has been a nice break getting stuck & landing it on the first attempt, I am so grateful.

3 comments:

Aunt Lynn said...

Hi Sandi,
I'm so glad that you had some sleep last night and no fever...wooo hoooo!! You didn't mention the pain so I'm hoping that is easing up for you also, thank God. Good luck with the benefit tonight I'm sure it will turn out great. Keep up the good fight girly. I love you.
Aunt Lynn

Unknown said...

hi honey, sorry i didn't get you called back sooner and sorry i woke you up when i did. hopefully you got back to sleep. i hope the benefit was a huge success for you guys.i hope the fevers stay away and you can go home next week. i would like to know the source of the infection so you can avoid another problem like this. i love you bunches.love,aunt bonnie

Anonymous said...

Hi there,
I am glad to hear that you got some rest last night, I am praying that you will be fever free and feelin' better. I hope that your benefit was a huge success, if they'd deliver to W.V. I would order a bunch of spaghetti!
Keep up the fight, Hugs and Kisses
Prayers and Wishes Betty Lorraine

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!