Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Sunday, January 4, 2009

January 4, 2009

I forgot to post my labs from Friday so here they are.
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
18 Dec-----107---1.3---------90-------8.5-----------2-----1 Unit Platelet
19 Dec-----108---2.6-------1300-------8.6-----------4-----1 Unit Platelet
20 Dec-----109---5.2-------4300-------8.6-----------43----1 Unit Platelet
22 Dec-----111---12.3------10800------8.6-----------23--------------N/A
24 Dec-----113----3.3-------1400------7.3---------45----1 Unit of Blood
26 Dec-----115----32.5-----29600------8.8-----------70--------------N/A
29 Dec-----118----3.6-----1836------9.6-----------121--------------N/A
2 Jan-----122----2.7-----1400------10.1-----------193--------------N/A


Katie made it home from her Dads without incident! I was nervous with her flying alone for the for the first time but she did real good. Her Dad bought her a cell phone (Paige is extremely jealous) & put her on his plan so she was very excited about that & her DS. She got sick later that night & was sick most of the day on Saturday as well so she will have to wait for her birthday with us until I get out of the hospital.

I got my package from Aunt Lynn with my Alpaca Hat on Saturday. I tried it on & not only does it fit but it is so soft & warm. I showed it to Marc & he joked that he wanted a Black one for riding so Aunt Lynn spoke to the lady that made mine & she is making him one, how cool is that!

Yesterday we had a great visit with my Aunt Debe & my cousin Amber, they drove up from Lima & stayed all day. Amber got a very full dose of Zack Attack & is well on her way to being a Wii Fishing Master. Debe & I got to talk a lot it was a very nice & relaxing day.

If it isn't one thing it is another. My ANC Counts went down on Friday even lower than what they were & they have not come back up since. I am still out of the Neupogen shots so we have been being very careful. I knew I was being admitted Sunday & I would not see my Dr. until then to get a new prescription. So First thing this morning I called the James to make sure they had a room for me & they told me I was not scheduled until the 7th. I got real upset about this & so did Marc because no one called us & told us of the changes (again, this happened the last time). Marc made me page my Dr. & have her fix it. After talking to her she called in & was able to get me in today, I guess a nurse was supposed to call me & tell me that I was not going to get the 4th but she never did. So my next issue is that hopefully they can get me on the 10th floor & start my Chemo tonight but we will have to wait & see.

On a side note Marc got the bedroom all painted & has started in on the bathroom. I can't believe how fast he got it done & it looks great. I suspect he will have the guys come over & help him move the furniture this week while I am in the hospital.

I am sure there are some things I missed but that is the quick down & dirty of what has been going on this past week. I hope to get all the pictures uploaded this week while I am in the hospital.


It's Time to Roll up your sleeves
For those of you that will be in the Lima area on January 8th from 8:00-2:30 there will be a Blood Drive dedicated to me at the Allen County Department of Job & Family Services 1501 S. Dixie Hwy.Lima, OH 45804 (in the old Westinghouse building). I believe this will be open to the public (walk-ins welcome), however if anyone knows ahead of time they want to participate please call Tracy Hollar @ 419-999-0297 for possible scheduling. My Aunt Debe has been working real hard with her employer & they have made great strides in making this a very coordinated effort with multiple agencies involved. Unfortunately I will be in the James at the time of the Blood Drive undergoing my 4th & hopefully final round of hospitalized Chemotherapy but I will definitely be there in spirit!

Benefit Scheduled
Many of you who know me may remember I used to be on the Board & the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were in Rainbow. I was contacted by Mom Wendy Hall, Mother Advisor from The London Assembly #208 Rainbow Girls & they are holding a Spaghetti Dinner Benefit for me on January 24th from 5:00 pm-7:00 pm at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net

3 comments:

Aunt Lynn said...

Hi Sandi,
Glad the hat made it & it fits & that you like it! The hat will definitely keep your head warm & Marc's should do the trick for riding also, I will send his as soon as it gets done. I was glad that Debe & Amber got to come spend the day with you guys, I was jealous I wanted to be there too, but I was in spirit. And, you would think that a hospital dealing with the kind of patients that they do would have their shit together a little better than they do but thank god you called ahead to check so you're not sitting there waiting on a room to come available or driving to and from for nothing. Glad to read katie made it home from her dad's ok with do delays. Well, I hope your Dr gets everything straightened out so you can get in & get this round of treatment started. And, I'm sure Marc & your guys friends will have the room ready for you when you come back from the hospital, it will be so much better for you than running up & down those stairs. Stay strong & We'll talk soon. I love you.
Aunt Lynn

Unknown said...

hi honey, i hope all the treatments get started on time and all goes well. i love and miss you.i'm glad katie is back.i am glad you guys had a good time yesterday,like lynn i wish i could see you more.sorry.love you. love, aunt bonnie

Unknown said...

sandi,
just wanted to drop a line and tell ya how much i enjoyed the visit yesterday. It seems that with all that has gone on with you and us this past year we kind of slacked on the visits and i miss them. thanks again

Oh Aunt lynn how about some hats for the club!! heheheheh just kidding.

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
~~~~~~~
Take risks: if you win, you will be happy; if you lose, you will be wiser.
~~~~~~~
If you are never scared or embarrassed or hurt, it means you never take any chances.
~~~~~~~
Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!