Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, January 26, 2009

January 26, 2008

Here are today's labs
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
15 Jan---135-----0.3------0-------7.9/9.4-----------35--1 Unit of Blood
19 Jan---139-----0.2------0----------8.2-------2/35-1 Unit of Platelets
20 Jan---140-----0.2------0----------7.7---------26----2 Units of Blood
21 Jan---141-----0.3------0----------9.5----------17----------------N/A
22 Jan---142-----0.7-----410---------9.0------13/43--1 Unit of Platelets
23 Jan---143-----1.8----1400---------8.5----------38----------------N/A
24 Jan---144-----3.3----2700---------8.4----------34----------------N/A
25 Jan---145-----5.9----4320---------9.0----------28----------------N/A
26 Jan---146-----4.5----3100------9.1----------37------------N/A

I sweat like a freight train through the night then I froze because the bed was soaked. I woke up to Carli's smiling face saying you want to go home today. I sat up & said Hell Yeah! She laughed & said she was going to e-mail Dr. Walker my oversight Dr. & work on my discharge paperwork & new prescriptions. I am so relieved I miss the kids so much. It has been a very long week & one if not the toughest of my life. In talking to Carli my fever broke sometime between Thursday night & Friday Morning, they removed my PICC Friday afternoon, the PICC culture came back negative. The CAT Scan showed whited patches on my lungs so they started me on the anti fungals right away & they are sending me home on a months supply of anti fungals. They are uncertain which was the cause of the fevers because they stopped before the line was out & before the CAT Scan. I have to have a follow up CAT Scan in a couple of weeks to check to make sure the white patches on my lungs which is assumed to be a fungal infection is gone. They cannot confirm it is a fungal infection without doing a bronchoscopy procedure & they are not going to do one. I will be getting my 5th Bone Marrow Biopsy in a couple of weeks as well to see where we are at with my Cancer before we start the maintenance chemotherapy. I asked Carli to make sure Dr. Walker finished my Employer letter to have my disability continued since I cannot go back to work like I had planned to try in a couple of weeks. So it looks like that will get pushed back another month or so which is for the best. It is going to take me a few weeks just to get my strength back from this.

Marc was up here at the hospital first thing this morning he is patiently awaiting my discharge paperwork. I guess when Marc brought Zack home from Misty's yesterday he said "where's my mom?" Marc told him I was still in the hospital he said he did not care I want my mommy. Marc said he didn't seem pressed about it he was more concerned I wasn't home. It will be nice to surprise him & the rest of the kids later on this afternoon.

Dr. Lam Came in & assessed me & she is going to send Dr. Flynn down here to access me one more time before they let me outta here.

The important thing is I'm going home!

6 comments:

Aunt Lynn said...

Hi Sandi,
YEA!!!! I'm so happy for you being able to go back home today. I know it will be a very nice surprise for the kids too. your counts are looking good too, yes. I'll call you later in the week, take care & stay strong. I love you.
Aunt Lynn

Anonymous said...

RIGHT ON!!! I'm stoked you're going home! The kids are gonna sh*t frisbees when they see you! Yay!! I love you Sandi! Keep fightin'! YOU CAN & WILL BEAT THIS! <3 Amber

Anonymous said...

WOOHOO! Hopefully by now you are home!

Paula

Anonymous said...

I am so glad to hear that you are going home, the kids will be so surprised!! YAY!!! Betty

Unknown said...

hi honey,i am so happy you are going home. hopefully your dr. flinn will be in a good mood and not cause you any problems. if all went well you should be home. the kids will be thrilled. i hope you take it easy and rest.enjoy your evening at home.love you.love,aunt bonnie

Unknown said...

hi honey,i am so happy you are going home. hopefully your dr. flinn will be in a good mood and not cause you any problems. if all went well you should be home. the kids will be thrilled. i hope you take it easy and rest.enjoy your evening at home.love you.love,aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!