Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Sunday, January 25, 2009

January 25, 2009



From what I hear the Benefit was a big success last night. There were people coming in & out the whole time with takeout. Several dined in as well, Marc's Dad & his girlfriend Pat came up, There were about 30 or so Missing Link Members from Columbus that came, Paula & her husband came up for their "date night" I thought that was cool, Misty brought Zack up as well as many members from the London Community. Marc said he thought there was a couple of people there from ODH but he could not remember their names. Paige took some video of it so I can't wait to see it. Mom Drum & the Marysville Rainbow girls came & helped out. Marc said Mom Wendy was in the kitchen all night cooking over a spaghetti pot. Katie & Paige tried to help out & Mom Wendy ran them outta the kitchen & told them to go eat. The Rainbow Girls girls were very busy serving everybody, Marc said all the girls did a really good job. This Benefit means a lot to us I know Wendy & Keith Hall really put a lot of hard work into it along with all the girls & it came from the heart. Thank you so much London Assembly #208 & Marysville Rainbow Girls to, you ladies are awesome!

While everyone was at the Benefit I was taking a much needed rest. It's nice to look over this morning & see my lonely little IV Pole only has 2 bags instead of the 8 bags that it was holding all week long. My C-Diff culture came back negative today so I am off contact per-cautions. We kinda figured the antibiotics was what caused that problem, they had me on so many powerful antibiotics it was a matter of time before they altered my digestive tract.

Here are today's labs
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
12 Jan----132----0.7-------448-------9.5-----------117--------------N/A
15 Jan---135-----0.3------0-------7.9/9.4-----------35--1 Unit of Blood
19 Jan---139-----0.2------0----------8.2-------2/35-1 Unit of Platelets
20 Jan---140-----0.2------0----------7.7---------26----2 Units of Blood
21 Jan---141-----0.3------0----------9.5----------17----------------N/A
22 Jan---142-----0.7-----443---------9.0------13/43--1 Unit of Platelets
23 Jan---143-----1.8----1400---------8.5----------38----------------N/A
24 Jan---144-----3.3----????---------8.4----------34----------------N/A
25 Jan---145-----5.9----????------9.0----------28----------------N/A

They did not come in & draw my Labs until 7am & they stuck my left hand again, she got it on the first try but I am so tired of getting stuck in my hands it is really painful. I was looking at my right bicep where the PICC line used to be, the spot is about the size of my pinkie fingernail. It feels so weird to not have the line in, my right arm mobility & strength has been so diminished since they put it in back in September. My bicep is saying wimpy wimpy wimpy like the old Hefty trash bag commercials. We still do not have the culture back from the line but is it comes back positive it is hard to believe that little hole about took me out. Look at my WBC counts my little soldiers are multiplying like crazy. I don't know my ANC Counts because no one down here knows how to do the calculations but they took me off the Neupogen Shots so I am close if not over 5,000 Earlier this week I was dying & that is no exaggeration but today I am alive & well WOOHOO!

I had a low grade fever of 99.9 last night around 10ish but I haven't had any fevers today. They are taking me off the IV antibiotic Vancomycin & putting me on something else. They are pushing to get me on all oral antibiotics & mentioned that my counts were doing really good & they may send me home tomorrow, so I am very excited. My longtime best friend from Lima Lisa Benhke, is coming to see me today. I have not seen her in years & I can't wait to see her. Kathy Putt & Momma Morrison are also coming up later on this afternoon I am sure to be smiling all day my face is gonna hurt tonight, so I am so glad I took a break from all visits yesterday. I need this day really to refresh & re-energize. I felt better than I have all week & I haven't even had my shower yet.

It just started snowing outside & it looks like the inside of a snow globe from up here the snow flakes are so big!

6 comments:

Anonymous said...

Hi Sandi!

I am soooo glad that you are feeling better! I will continue the prayers though:)
They did an awesome job last night and the food was good.
Talk to you soon.
Paula

Anonymous said...

zackeryz
Zackery typed you such a great message but as usual I could not get it through....I tried every way possible long story short it was really cute. He got a visit from the ttoth fairy last night and she mailed him a dollar in the envelope...and it had in god we trucst and a lot numbers probably 5 thousand and he was so excited to get it...he had no had no idea how she knew where he was. he loves you and it's snowing and the cars are covered with snow and the roads are slobbery with the snow .....go figure....we played hide and go seek this morning and I slept in grandma's bed and I was warm...and for breakfast I had toast and butter and apple jacks and bacon and milk.....we are trting to recreate this as we go along. we also played the plump game and I like for grandma to set on me.....she hurts. Last night we went to the rainbow girls house and I had chocolate chip cookies, cake, and ring pop and then we went to McDonalds and got a happy meal and a hotel for dog and his name is Lenny. We came home to grandma's apartment, it's called aptartment corn and we watched tv until 10:30 PM....grandma made me go to bed then. I was really warm in grandma's bed....I am going to be at my house todaywhen daddy comes after me, it's still snowing and it's not getting slobbering ( what is that ?) I will see you at home tomorrow this morning. zack vest

Unknown said...

hi honey, i am thrilled you are feeling better. i am glad lisa is getting to come see you.i love you bunches, have a great day. love, aunt bonnie

Anonymous said...

Hey Sandi!
It was really good to talk to you Friday-I am really glad to read your blog today and see your feeling better. I can't wait to come and visit again soon.
I love ya & will keep praying for you!
Ang

Aunt Lynn said...

Hi Sandi,
I am so happy that the benifit turned out well. I am most happy that you're feeling better & your numbers are coming back up. Hopefully you'll be home in your own bed tomorrow evening snuggled up with the Zack attack. Enjoy your visits with your friends and stay the strong beautiful woman that you are. I love you!!
Aunt lynn

Anonymous said...

Hey my Lil "SIS",
I am finally getting a chance to read your blog and catch up with after I called you last week. I am thanking the LORD for the good news that I was reading. You are proof that you cant keep a good man, or woman, down!! I will continue to keep you and the family in my thoughts and prayers. And will try to work my schedule to get down to see you.

Bill "Big Daddy" L

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!