Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Tuesday, January 20, 2009

January 20, 2009

Here are today's labs
Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
8 Jan-----128----3.9------3800-------8.6-----------181--------------N/A
9 Jan-----129----3.9------3800-------8.7-----------163--------------N/A
12 Jan----132----0.7-------448-------9.5-----------117--------------N/A
15 Jan---135-----0.3------0------7.9/9.4---------35------1 Unit of Blood
19 Jan---139-----0.2------0------8.2-----2/35----1 Unit of Platelets
20 Jan---140-----0.2------0-----7.7---26--2 Units of Blood

I was awake pretty much all night, my temp kept spiking up to 103 off & on. I usually sweat a little bit at night but I have been sweating continuously since about 3pm yesterday. I don't mean sweating a little bit either. My clothes & my bed are drenched. I am currently on vancomycin & piperacillin antibiotics, my RN Jerry told me this morning that my blood cultures they drew in the ER shows I am growing bacteria in my blood, gram positive cocci in chains, basically from what I understand it is a blood staph infection. My Dad made it down this afternoon. I am supposed to get a blood infusion later this evening.

Marc has been with me all day he is really worried. With the current situation as it is we could really use all the prayer we can get right now so if you know any prayer warriors please ask them to say one for the family & I.

Benefit Scheduled for Saturday, January 24, 2008
Many of you who know me may remember I used to be on the Board & the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were in Rainbow. I was contacted by Mom Wendy Hall, Mother Advisor from The London Assembly #208 Rainbow Girls & they are holding a Spaghetti Dinner Benefit for me on January 24th from 5:00 pm-7:00 pm at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net

7 comments:

Anonymous said...

As always, our prayers are with you.

Aunt Lynn said...

Hi Sandi,
Well at least they know what you're fighting now. I've called all the prayer warriors I know so you all stay strong & we'll get through this together. I'll call you later this week, I love you all.
Aunt Lynn

Anonymous said...

Hi Sandi,

I am praying for you as well and all of my church is too:)
Paula

Unknown said...

hi sweetie,you did sound stronger this evening.i have a couple of prayer chains keeping you in prayer. all of the kids and staff at school are praying for you.you are in my thoughts and prayers always.i will call you tomorrow morning and check in.i will see you tomorrow.i love more than you can image.hold tight and fight . we all love you.hugs and kisses.love, aunt bonnie

Anonymous said...

I love you so much Sandi! FIGHT! (Who needs a password? I'll just leave ya love notes "anonymously")
Amber

Anonymous said...

Hey Rooster, Know that we are praying hard for you. This is just another hurdle that if i know you will be jumped in no time. If you or marc or the kids need anything, Know that your sister and brother are just a phone call away. We love you girl. Ben and Tam (clutch and berries)

Aunt Lynn said...

Morning Sandi,
I hope you got some rest last night. I'm continously praying that your Dr's get this figured out so you can come home & rest there. Wishing you a good day Sandi, I love you.
Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!