Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Monday, January 5, 2009

January 5, 2009



Date------Day----WBC----ANC--------Hgb--------PLT---- Transfusions
18 Dec-----107---1.3---------90-------8.5-----------2-----1 Unit Platelet
19 Dec-----108---2.6-------1300-------8.6-----------4-----1 Unit Platelet
20 Dec-----109---5.2-------4300-------8.6-----------43----1 Unit Platelet
22 Dec-----111---12.3------10800------8.6-----------23--------------N/A
24 Dec-----113----3.3-------1400------7.3---------45----1 Unit of Blood
26 Dec-----115----32.5-----29600------8.8-----------70--------------N/A
29 Dec-----118----3.6-----1836------9.6-----------121--------------N/A
2 Jan-----122-----2.7-----1400------10.1-----------193--------------N/A
4 Jan-----124----4.4------????------10.0-----------225--------------N/A
5 Jan-----125----2.9------????-------9.9-----------214--------------N/A

This is me, Aunt Debe & Amber when they came up to visit on Saturday.



Marc took me to the hospital yesterday the weather was just a yuck day with fog, rain & cold. I think it was an omen for what was to come. I have never been admitted to the James on a weekend so I had no way of knowing that the attending physician leaves very early. No big deal right? Wrong! No attending means no Chemo order & no pharmacist to fill it. I basically came in for lab draws & a kidney drowning. I could have got all that done at Madison County Hospital. I didn't have the energy to be raise any Cain about it. I keep telling myself that this is the last round in the hospital don't get worked up over the small things.

The fellow, Dr blah blah, I don't even know her name, was very thorough in her assessment of me. This last round was not as event free as the previous ones. In the past 2 weeks I have had a lot of sporadic memory loss that was troubling & way out of the ordinary. At moments I have a hard time carrying on a conversation without bouncing from topic to topic without closing one out. The Dr started talking about having a Cat Scan or a MRI of my brain, just to make sure the Chemo isn't eating my brain I guess. After the Dr came in in the morning to look at me he believes it is just Chemo Brain catching up to me.

So one night down 5 more to go. To my dismay today did not start out much better.delay after delay. They finally started my Chemo a little after 1pm which is better than the 8pm they told me which had me in an uproar earlier. So I am stuck here until Saturday. There is no way around it. I will miss another club meeting which sucks but considering the alternatives I can live with it. I just hate having Marc at home to deal with all 4 of the kids by himself. That is enough to wear you down & he has been so stressed here lately.

Brandon update: after damn near starving himself & pushing his body to the limits Brandon did not make weight for the wrestling tournament by not even a pound. He ended up having to wrestle at 160 after all, he was pulverized. It was a 2 day tournament he put on 7 pounds that night afterwards & wrestled 160 again & won 2 of his 3 matches. He has given up the fantasy that he can wrestle in the 140's & is now content for the most part with wrestling at 160.

Can you tell I got the photo's from my camera uploaded finally, unfortunately our Christmas day photos are on Marc's Camera.

This is a picture of Katie down at her Dads, she looks great!
This is Dorene & Viola when they came bearing gifts for the family from my friends & Colleagues at ODH. It was really awesome, I know I said it in a previous posts but it bears repeating, Thank you so much!


On a side note, Marcus has been a very busy bee painting "the Room". We really had a hard time finding a color that would go in there, everything we tested on the wall showed up purple next to the Fun Yellow color Misty had on the walls. This picture was our first color tester. We took a chance on an antique marble color & luckily with 2 coats it covered the yellow & looks really good. When I get out of here I will take a picture & show you. He still has the bathroom to cut in & put on a second coat but that should be done by the time I get out, he is amazing.


It's Time to Roll up your sleeves
For those of you that will be in the Lima area on January 8th from 8:00-2:30 there will be a Blood Drive dedicated to me at the Allen County Department of Job & Family Services 1501 S. Dixie Hwy.Lima, OH 45804 (in the old Westinghouse building). I believe this will be open to the public (walk-ins welcome), however if anyone knows ahead of time they want to participate please call Tracy Hollar @ 419-999-0297 for possible scheduling. My Aunt Debe has been working real hard with her employer & they have made great strides in making this a very coordinated effort with multiple agencies involved. Unfortunately I will be in the James at the time of the Blood Drive undergoing my 4th & hopefully final round of hospitalized Chemotherapy but I will definitely be there in spirit!

Benefit Scheduled
Many of you who know me may remember I used to be on the Board & the Treasurer for the London Assembly #208 Rainbow Girls when Katie & Paige were in Rainbow. I was contacted by Mom Wendy Hall, Mother Advisor from The London Assembly #208 Rainbow Girls & they are holding a Spaghetti Dinner Benefit for me on January 24th from 5:00 pm-7:00 pm at the Chandler Lodge located at 65 North Main Street, London Ohio. The Menu will be Spaghetti, sauce with meatballs, bread & butter, salad with dressing & a drink for $5.00. Desserts will be available for a donation & you can dine in or carryout is available. If you would like any information please contact Keith Hall @ 614-302-0431or airforcekeith@sbcglobal.net

2 comments:

Aunt Lynn said...

Hi sandi,
Well, hopefully the day got better as time went on & they get all your things that you need ordered, so there won't be anymore delays this week. What a great picture of Miss Katie!! And, oh my are you sure the name of that yellow was "fun"? It would make me nautious, way too bright for me...WOW!!! What an amazing guy Marc is to get all that done in a few days time but you guys are young & can get through this. I'm even more jealous seeing pictures of my family with you, but we may be able to come sometime this summer if I can make it happen even if only for a few days. I'm glad to read that Brandon is content to stay in a weight class he doesn't have to risk his health in, he'll do just fine at 160 I'm sure. I'm praying everything goes as planned for you this week so you can be released on schedule, take care & I love you.
Aunt Lynn

Anonymous said...

Hi Sandi,

I hope things are going better today. They just don't know who they are messin with do they:)?

My stepsons go home on Thursday and Tony is off on Friday (thanks to honda) so I will try to make it down pending any crazy weather conditions.

Talk to you soon!
paula

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!