Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Tuesday, October 14, 2008

October 13, 2008

I knew my counts were not going to be up to 500 today so I told Marcus he could ride his bike up to see me. My White Blood cells went from 3 to 3.2 You can imagine my surprise when my Dr. said if I can't take being in the hospital anymore & I promise to follow her guidelines she would let me go home! So finally I made it out of the hospital, it has been 1 month to the day I was admitted to the James. My Neutraphils were only at 350 but I promised the Dr. that if I get a fever or anything that I will come back in. I have to be extra careful around people, wearing my mask out in public until my neutraphils get up to 1, 000.

They scheduled me to go to Madison County Hospital this Wed for Lab draws, then back to the James on Friday for the 4th Bone Marrow Biopsy & PICC dressing change, back to Madison County Hospital on Monday for more lab draws & then Wednesday back to the James for the results & scheduling my next admission & 1st go round with Consolidation Chemotherapy.

I was so sure I wasn't getting out today Marcus was just coming for a visit so he rode his motorcycle up to see me. I sent him right back home to get the truck, I had so much stuff it would not all fit in the car.

I had everything packed & was waiting on him to get back. we loaded the truck & were outta there. We went to Chipolte for lunch, I was ready to brave it again. We got home right before the kids.

They were all very surprised to see me. Zack came running to me from the bus. After everything settled down. I wanted to go for a short walk & since Zack is getting to be so chunky I thought he could use the exercise so he rode his bike & I walked behind him over to Ben 7 Tammy's & then back. He did real good If he got to pedaling to fast I would ask him to slow down & he would.

Later we took him to great clips for a hair cut since his school pictures are this week & his hair was getting so long. Hollywood's girlfriend works there so she cut his hair it was so funny. Zack cannot stand to have hair on his face or neck. so I had to keep brushing it off with a towel.

Afterwards we went to Walmart to drop off my prescription & get me a thermometer. Once back home everyone ate. I was going to go out to The Shop & have Donnie fix me a big greasy cheese burger, fries & cheese sticks but it was getting late & I figures I would be pushing it with the Chipolte earlier.

Spike is laying on my lap as I type this he is so cute. I was ready for bed & fir the first time in several months I was able to climb the stairs like a normal person! I know I am not better yet but I sure feel better than I did!

2 comments:

Unknown said...

honey i am so glad you are home.everyone must be thrilled.be careful and have a good day love you ,aunt bonnie

Aunt Lynn said...

Hey Sandi, I am so happy for you that you get to be home for a bit but please be carfull. I just don't want you back in the "Hotel" any sooner than you have to be. Give all those kids & spike a big hug for me. Enjoy your time at home. Love you bunches, Aunt Lynn

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

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Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
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Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
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Take risks: if you win, you will be happy; if you lose, you will be wiser.
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If you are never scared or embarrassed or hurt, it means you never take any chances.
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Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
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Be kinder than necessary, for everyone you meet is fighting some kind of battle.
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I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
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And in the end, it's not the years in your life that count; it's the life in your years.
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They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!