Welcome to my Blog!

This was originally intended for those who have AML & stumbled across my blog in their search for information or survivors. I also used this to keep in touch with the real world, my support system was vital in my recovery and I also used it to sustain some form of sanity. I am a realist, and I have learned this has been and always will be a fight for my life. The initial leukemia battle is still here in the archives for all my fellow AML Warriors. There is so much information and no one wants to tell you. If you are just starting your treatment you may not even think to ask questions just because you are so sick. Please checkout my archives but start back in September 2008 and work your way towards today. There is a lot to read and a ton of type-o's, but it is all there the good the bad and the ugly. I challenged the Doc's, I always asked questions and pushed them for answers even if I did not like them. The Docs are not used to that so if you can, I encourage you to challenge them. They need to remember that although you are very sick you are not dead! My Blog content has morphed over the years. It's all about my life experiences, definitely my opinions and the lifelong impacts of the disease that pop up from time to time. I am a Gen Xer & I have a lot to say about everything. Rarely do I hold back or turn on a sensitivity sensor. I post regularly on Facebook nowadays just because it is faster. I welcome your comments, questions or feedback.





Friday, October 10, 2008

October 9, 2008



My labs were ungodly slow to get back today. I think it was because I wanted to know what my neutraphils were so bad. Around 2pm they still were not back so I went for a walk, it was so nice outside & I had not been out really for about 2 days. I had on my black sweat pants, a dark purple scrub top, black dew rag & that stupid duck bill mask I have to wear every where. Needless to say it was sunny out & the further I walked the hotter it was getting. I walked from the James all the way to the Short North. I have not been up by campus in years & the area has changed so much. There is a real ghetto are between campus & the Short North I found out. I started getting really hot & sweaty so I turned around at King Ave. By the time I got back to the 7 Eleven by Taco Bell on High I was dehydrated & a little winded to say the least so I had to stop & get a Vitamin Water. Marcus called me about that time & I couldn't hardly talk I kept telling him I had to get back to the Hotel because my brain would not let me say hospital. I think I pushed myself a little to hard.

When I got back to my room I had to lay down for awhile & I was pissed because my lab reports still were not back yet. Finally around 4:30 after I asked the RN to call down to the lab to see what was going on I got my results. My Hemoglobin went from 10 to 9.9, My Hct went from 28.4 to 28.3, my White Blood Cell count went from .9 to 1.2 so I knew my neutraphil count had to of gone up & my platelet count went from 34 to 64 ( 3 days without an infusion). My Neutraphil count went from 100 to 360 so I am getting a lot closer to getting outta here, maybe even tomorrow, I hope so. I have plans for this weekend!!!

Even if they do let me out this weekend I found out I get to come in first thing Monday morning for another lovely Bone Marrow Biopsy & then again on Wednesday for the results & to schedule my next admission. Sounds like they are not going to give me much of a break.

Kotsko from my unit came up real quick to check on me he is a Columbus Firefighter & was on a squad run. It was good to see a familiar face & a survivor, he beat Lymphoma Cancer a few years back.

Other than that my night was uneventful. I watched the 3rd disk of season 1 My Name is Earl. I am so stinking bored & I am ready to go home!

6 comments:

Aunt Lynn said...

Morning Sandi,
You need to stay out of the Ghetto!!! Don't push yourself so hard, you may end up in the "Hotel" longer, and that wouldn't be good!! Glad to hear those nutraphills took a jump in the right direction. Why are they doing so many biopsys? I know what they're looking for but damn it man those are too painfull to have on a reg basis. Hope you have another jump in numbers so you can go home for a bit. I wish we had some of that warm weather here, they got 6" of snow in the Black Hills last night....YUK!!!....I'm not looking forward to any of that!! I love you Babe, talk to you soon.

bluetew said...

Sandi! You are in my thoughts and prayers today. You are an amazing, strong woman. It shows now more than ever...I know it probably does not feel like that to you, but it is true. Also, I feel for you in all that paperwork for disability and such. That sucks! Just slog through it a little at a time. God bless you and your family! Love, ~tonya

Ruth Gerding said...

Sandi,

Take it a little easy. I can understand why you really want to get out of there. I continue to pray for your lab results to continue to improve and you feel stronger every day. If you can share a home address for us to send some correspondence in the future that would be great.

Gently take care of YOURSELF!

Ruth

Anonymous said...

Hi Babe...well, the first round of kids have had their flu shot....I can't get mine until Tuesday I think at the Senior Center.I don't think it is going to be a good experience when Zack gets his today, Brandon says he has to hold him down....since Zackery is stronger than I am we'll have to see how that one works !! ha ha. I woke up this morning stepping in dog poo....not good without my coffee. I got over it but my shoe is till outside with the crap all over it. I know now why I really do not like animals. I've been washing everything in sight in the dining room that even looks like it is dusty. I will move to your bedroom in the morning when Marc gets up. The kids and Marcus worked a long time last night on your bathroom....Look Kiddo, you might be one tough cookie but there is such a thing as common sense....why in the world would you walk that far yesterday????? I know how far that is and you need to take things in moderation for awhile.....as far as plans for this weekend I hope that they are "gentle plans".....get it !!!! I love you dearly, but sometimes I think you push the preverbally button just a little to far....just a little motherly advise !!!!! You are sick....you need to act like you are sick....and you need to get well....so with that said, got to go and do laundry...it never stops...Much Love, Misty

Anonymous said...

OK, Sandi, Who am I going to use as a contact down at Jeff Jones's office now? This is a poor way to get out of having to talk or email me; Maybe I should change my deodorant?

Hang in there. You are in my prayers.

Bob Butler
Erie County Health Department

Unknown said...

hi honey,i hope your numbers get where you want them this weekend. you should not push yourself so hard.usually your being stubborn and pushing the limits is ok or tolerable,BUT in this case it could cause you a set back . you have to take it easy and learn to rest.your little venture reminds me of a little 15 year old girl who use to walk all over... fast and with her ponytail bouncing as she went flying on her way home or to work.i wonder who that could have been???? please take care of yourself. i love you so.....much.love,aunt bonnie

Sentimental Journey

2010 Family Pics

Moments in Time

Quotes

~~~~~~~
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body but, rather, to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming, "WOoHOo! What a ride!!"
~~~~~~~
Regret for the things we did can be tempered by time; it is regret for the things we did not do that is inconsolable.
~~~~~~~
Take risks: if you win, you will be happy; if you lose, you will be wiser.
~~~~~~~
If you are never scared or embarrassed or hurt, it means you never take any chances.
~~~~~~~
Ask yourself: "What have I missed out on simply because I was too afraid of what others would think?"
~ ~ ~ ~ ~ ~ ~
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
~ ~ ~ ~ ~ ~ ~
I'd rather have 30 seconds of wonderful than a lifetime of nothing special.
~ ~ ~ ~ ~ ~ ~
And in the end, it's not the years in your life that count; it's the life in your years.
~ ~ ~ ~ ~ ~ ~

They call me Rooster

They call me Rooster
& Leukemia did not snuff this one!