NEWS UPDATE: I am getting released this afternoon Oct 13, 2008!!!!! I will post more tomorrow everything below is from the 12th.
My Hemoglobin went from 9.8 to 10.1, my Hct went from 28.1 to 29.1, my White Blood Cells went from 2 to 3 & my Platelets went from 283 to 435. My neutraphils came back at the normal time for the first time in the past 3 days & I went from 30 to 150, we will have to wait & see if it bounces or or holds tomorrow.
Marcus went to the Hill Climbs with the club & when they got back he took all the kids out to the club house. It is a nice break for them & they get to hang out with all the other kids. They always to seem to have a good time.
The day seemed to move at a turtles pace. I got very bored easily, it felt like the hospital walls were closing in on me so I started surfing the web for success stories. It is becoming an obsession with me I feel compelled to find survivors of this because they have to be out there somewhere & there is so little positive info accessible out there. I follow a couple other blogs of AML patients I looked at their updates today only to find the one lady who was diagnosed 2 months ago just died on the 10th & the other lady who was diagnosed in May went home from the hospital so she could die where she is more comfortable. It is so frustrating trying to find the positive stories where people make it through this. I know they are keeping me in the hospital for my protection but it scares the hell out of me sometimes because if it goes bad with this type of Leukemia it goes bad pretty quick & they odds are not favorable. I think it would just really suck to spend so much time in the hospital only to die months down the road. Needless to say after reading these I got in a real funk.
I do not have any pictures today, I forgot my camera when I went out for a walk. I was so irritated I made it all the way to North Broadway in Clintonville without to much effort. I did find this cool shop called Rag O Rama I would like to take Kim to it when I get out for Halloween costume shopping. The walk back was a little slower but I was in no hurry to get back either.
I ate my tomato soup for dinner & finished season 2 of My Name is Earl when I got back. I was just extremely bored. I finally laid down to sleep around midnight. Hopefully the Dr brings better news tomorrow if not, it may be in their best interests to skip my door.
Monday, October 13, 2008
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They call me Rooster
& Leukemia did not snuff this one!
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5 comments:
Look, it sounds to me like you have yourself dead already !!! Stop reading those things from Canada...their health caRE is free but I would not want to be sick and have to stand in line to get a doctors appt....go to leukemia.web.org/acute myelogenous leukemia, (AML)...they say survival rate is 70 to 80 percent and most of the ones that do not survive are older people, since they are the ones most likely to get this anyway. Got to go...I can't get into the doctor until Wednesday, doing laundry and have to get dressed since I have done nothing in the past days except try to breath....Much Love, Misty
WOOOOO HOOOOOOO!!!!!! I am sooo happy for you that you get to leave the "Hotel" But, please try not to over do it at home! And, even if there are no success stories on the computer you can damn sure start one!! But I am also sure there are some people that have beat this thing. Aunt Debe says, you go girl, she's very happy for you too!!! We all love you & continue to pray for the best outcome for you. And, we do happen to believe in miracles too. Love you bunches, Aunt Lynn
Hey Lady,
I like those counts today! Just take it easy when you get back to the house. Enjoy your family but don't worry about the little things. I'm up cooking this pumpkin corn soup recipe and it smells good, but looks pretty nasty. I found this cool web page that describes the HLA typing process and the genetics involved. It sounds like the general timeline for HLA typing is two weeks. I didn't realize that it took so long. Also, the HLA typing is not related to blood type at all, that surprised me. Call me anytime.
i hope this fines you at home and so much more comfortable.say hi to all the kids for me .they must be ecstatic.don't over do it. enjoy each warm sunny fall day.stop reading the sad stories.there many positive ones out there you will just have to find them.your aunt was right ,you start the positive stories for all the other people in your shoes.enjoy the evening .love you ,aunt bonnie.
Hey Sandy it's Paully,
So happy to read that you are going home finally. I have lots to tell you but would rather do it on the phone so I will call you in a few days (once you get settled down a little) tell my brother from another mother I love him and his facial hair makes him look old. I love you and you are always in our prayers out here in Mass.
Paully
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