October 6, 2008

My post is much later than usual for you early risers. I typically wake up at 4:00 am & stay up from the lab draws & vital checks. Not today, I have been awake but just so tired that I did not feel like doing anything. My counts are still low & I am still bleeding a lot so this may be a little expected.

My hemoglobin went from 10.1 to 10.3, my Hct went from 28.5 to 29.2, my White Blood Cell count stayed at 7 & my platelet count went from 29 to 12 with an infusion it only bumped to 14 which was not a big bump. They were going to give me more but they are concerned that my body may start to build up a resistance to the platelet infusions so they decided not to give me any more today & see what happens, this could also explain the tiredness. My neutraphils went from 68 to 70.

Marcus brought Zack up to see me.

I gave him the birthday presents I got him. After he went through all of them he was more interested in the pumpkin whoopee cushion Angie got me. He kinda freaked out a little when I showed him my head. Marcus took this picture of him. He scooted back to the chair & said Woah mom you look like a man!

He wanted to try to measure my head with his little tape measure but I was afraid he would cut me so I wouldn't let him do it. Needless to say I put my dew rag back on pretty quick. It was funny to watch Zack play with all the gag gifts around my room.

Misty sent up real food for me (mashed potatoes, chicken & broccoli) thank god they haven't taken my food order 3 times this week so I was stuck with the standard meals which are horrible & no tomato soup. Marcus brought up some more clean clothes so I should have enough until I get released, which I am hoping is this weekend but if these counts don't cooperate it will be longer. The hospital is a pretty boring place for a 6 year-old so Zack was ready to go home rather quickly. Marcus seemed to be real irritated as well so I told them to go ahead & go home.

After they left I ate the food Misty sent up it was real good, I got a letter from the Ohio Department of Health (ODH) Human Resources office about my FMLA & me being separated from my job plus having to give bi-weekly updates & leave forms which confused the hell out of me. I am in the hospital & waiting on my disability to be approved so I do not understand it all, I need to call them.

I have been having a lot of bone & joint pain which may be an indication that my counts are going to start recovering. My nurse practitioner increased my hormone pill to try & stop the bleeding which can only mean more lovely acne, I can't wait!

Marcus has been busy at home he started hanging pictures in the stairwell & he got my bathroom vanity installed & the faucet actually works no leaks I am so excited. He hates to work with electricity but he got my old lights out & put my new light in along with the mirror. There is still some work to be done but it is a lot further along than when I came in the hospital a month ago.